Weʼve raised £615 to Help Henry to get to his Bone Marrow Transplant for SCID and make his 1st Birthday!
- Shipdham, United Kingdom
- Funded on Monday, 16th October 2017
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Henry at a mere 8 weeks old was diagnosed with a devastating condition called SCID (Severe combined immunodeficiency). We were totally unaware.
Our reality is ....
Not being able to pick him up until you have scrubbed your hands clean for three minutes and put on a special gown. Not being able to take him for a walk because he needs to stay in a sterile BUBBLE. Not being able to take him anywhere where other people are, especially children.
Henry was born without an immune system and cannot fight the simplest of infection, anything could potentially kill him. Even the ‘common cold’ passed on by our kiss could be fatal.
So far he has had numerous infections in his 8 weeks of life. He has a mouth ulcer the size of a 10p in his throat and a severe fungal infection - he receives everything via a feeding tube. Most untreated SCID babies die before 1 years of age. He is under the medical care of Great Ormond Street and is awaiting a bone marrow transplant (BMT) . But in the meantime he is in and out of hospital and back and forwards to Great Ormond Street.
We want to do everything we can for him, but his brother has also been affected as he is no longer allowed to go to nursery, play with other children , go swimming or to any groups and we need to make sure he is cared for too as he may pick up an infection that could be life threatening to Henry. Henrys brother, Oscar is the likeliest person to be a tissue match for the bone marrow , he's 17 months old. That means both our little boys are going through this ordeal.
Henry requires 24 hour care. His feeding and medications to keep him stable mean it's a 24 hour job! We need Henry to stay healthy and alive until he can have a BMT.
We desperately need help towards his continued care, so we can make it to his BMT and his first Birthday. We need to raise awareness for these rare diseases so these babies get to live a normal life outside of the bubble.. please help us do this for Henry!
- 2 years ago
Stuart Vinen2 years ago
Hi all This is our second page we have had to set up for Henry as the first expired and we couldnt extend it. Please keep sharing so those who were planning on giving to Shipdham 10k tomorrow still can. We are still crowdfunding for our little guy.
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Stuart Vinen started crowdfunding
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Oct 7, 2017
Good work Olha, a good cause, let's hope they make their target x
Sep 30, 2017
here is the next instalment from my head shave hope it helps xxx
Sep 27, 2017
Hi, I've seen the flyer that's been going around about your son Henry. Our hearts go out to you and unfortunately I was unable to attend the recent 10k run in the village. Best wishes x x
Sep 26, 2017
my heart is with yous
Sep 26, 2017
Found this page on Facebook and couldn't just scroll on. Stay strong and I hope he gets the treatment he needs xx
Sep 26, 2017
A new mum who just came across your cause and prays for your whole family's health and happiness. Stay positive and don't give up! xx
Sep 23, 2017
What a heartbreaking story, made aware of this by my cousins wife Olha who ran the 10K.
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