75%
£755raised of £1,000 target by 21 supporters

Weʼre raising £1,000 to buy specialist orthopedic equipment for Inga affected with Spinal Muscular Atrophy - SMA

Location
Caerphilly, Wielka Brytania

What is crowdfunding?

Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.

The page owner is responsible for the distribution of funds raised.

Story

(turn Eng Subtitles on)

Inga is our beloved daughter. She is already 3,5 years old. She is smart and beautiful girl. We are very proud of her.

But we cannot be fully happy because she is affected with Spinal Muscular Atrophy - SMA. Severe disease makes her muscles weaker every day. Inga has never walked. She cannot stand independently anymore. She is not able to do many things that a 3 year old can do.

We can help our daughter in few different ways. First of all we do a lot of physiotherapy – hydrotherapy, massages, muscle stretching etc. It helps keep Inga fit and makes her muscles disappear slower...

We could give Inga medicine – Spinraza. It has been approved for use in EU in June. But it is still not available in UK, mostly because its price – 700 000£/year...

Finally – we can help Inga cope with day-to-day activities by giving her specialist orthopedic equipment e.g.: ultra-light manual wheelchair, modern electric wheelchair, professional car seat, motorized training device. All that would keep Inga’s posture straight, keep her muscles as strong as it is only possible.

As you probably can imagine everything cost. But it is worth paying for all of that once we have a picture of Inga in our minds who get medicine and become stronger every day.

To make our dreams come true we need your generosity and support. Please donate regardless of the amount. Every penny matters.

Share this story

Updates

0

Tomasz Figurski

Updates appear here

    3 months ago

    Tomasz Figurski started crowdfunding

    Leave a message of support

    Supporters

    21

    • Roeland Krul

      Roeland Krul

      Jan 18, 2018

      £50.00

    • Anonymous

      Anonymous

      Jan 5, 2018

      £200.00

    • Krystian

      Krystian

      Jan 5, 2018

      Powodzenia trzymam kciuki.

      £30.00

    • Anonymous

      Anonymous

      Jan 5, 2018

      £10.00

    • Anonymous

      Anonymous

      Dec 15, 2017

    • Rafal  Bukalski

      Rafal Bukalski

      Dec 11, 2017

      £10.00

    • Anonymous

      Anonymous

      Dec 11, 2017

      Mighty Rees 😉

      £20.00

    About the fundraiser
    Tomasz Figurski

    Tomasz Figurski

    [object Object]

    Caerphilly, Wielka Brytania

    Hi! I'm Tom. I'm married to Gosia. We have two kids - Max (9 years) and Inga (3 years). We used to be happy family. Until 15th Feb 2016 when diagnosis for our daughter was made: Spinal Muscular Atrophy (SMA). That has changed our lives. We fight to be happy again!

    Report this Page

    * JustGiving crowdfunders pay a small fee for our service. Find out how much it is and what we do for it.

    Donate