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Tomasz Figurski raised £1,400 from 28 supporters.

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Closed 15/07/2018

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£1,400raised of £2,000 target by 28 supporters

    Weʼve raised £1,400 to buy specialist orthopedic equipment for Inga affected with Spinal Muscular Atrophy - SMA

    Caerphilly, Wielka Brytania
    Funded on Sunday, 15th July 2018

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    Story

    (turn Eng Subtitles on)

    Inga is our beloved daughter. She is already 3,5 years old. She is smart and beautiful girl. We are very proud of her.

    But we cannot be fully happy because she is affected with Spinal Muscular Atrophy - SMA. Severe disease makes her muscles weaker every day. Inga has never walked. She cannot stand independently anymore. She is not able to do many things that a 3 year old can do.

    We can help our daughter in few different ways. First of all we do a lot of physiotherapy – hydrotherapy, massages, muscle stretching etc. It helps keep Inga fit and makes her muscles disappear slower...

    We could give Inga medicine – Spinraza. It has been approved for use in EU in June. But it is still not available in UK, mostly because its price – 700 000£/year...

    Finally – we can help Inga cope with day-to-day activities by giving her specialist orthopedic equipment e.g.: ultra-light manual wheelchair, modern electric wheelchair, professional car seat, motorized training device. All that would keep Inga’s posture straight, keep her muscles as strong as it is only possible.

    As you probably can imagine everything cost. But it is worth paying for all of that once we have a picture of Inga in our minds who get medicine and become stronger every day.

    To make our dreams come true we need your generosity and support. Please donate regardless of the amount. Every penny matters.

    Updates

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    Tomasz Figurski

    Updates appear here

      9 months ago

      Tomasz Figurski started crowdfunding

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      Page last updated on: 4/19/2018 11:44 PM

      Supporters

      28

      • Anonymous

        Anonymous

        Apr 19, 2018

        £20.00

      • Anonymous

        Anonymous

        Apr 18, 2018

        Zbiorka pieniedzy z inicjatywy Piotrka Ziolkowskiego. Trzymamy mocno kciuki za Inge i pozdrawiamy goraco z Brukseli cala rodzine.

        £380.00

      • Dawn Thomas

        Dawn Thomas

        Apr 5, 2018

      • Helena Ślusarczyk

        Helena Ślusarczyk

        Apr 5, 2018

        £30.00

      • Anonymous

        Anonymous

        Apr 4, 2018

        powodzenia

        £10.00

      • Claudia Rees

        Claudia Rees

        Apr 2, 2018

        Thanks Tom. I hope Inga gets her equipment and more🤗. She is amazing x

        £25.00

      • Anonymous

        Anonymous

        Feb 4, 2018

        £20.00

      Great people make things happen

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      About Crowdfunding
      About the fundraiser
      Tomasz Figurski

      Tomasz Figurski

      Caerphilly, Wielka Brytania

      Hi! I'm Tom. I'm married to Gosia. We have two kids - Max (9 years) and Inga (3 years). We used to be happy family. Until 15th Feb 2016 when diagnosis for our daughter was made: Spinal Muscular Atrophy (SMA). That has changed our lives. We fight to be happy again!

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