Weʼve raised £20,000 to fund I am Rupert - www.iamrupert.co.uk - a Trust set up to support Rupert with his ongoing care, treatment and support needs.
- Haslemere, Surrey
- Disability support
- Time left
- Funded on Wednesday, 25th January 2017
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Today, on Rupert’s first birthday and in memory of his identical twin George, we are launching a Trust in his name –www.IamRupert.co.uk
Rupert has quadriplegic cerebral palsy with dystonia, the most severe form of cerebral palsy. In addition, he is on epilepsy medication and is at risk of seizures.
So much is still unknown about his condition and how it will impact upon him. He may never walk or talk. He may have limited vision. He may not be able to carry out other basic motor functions and he may also be cognitively affected. We simply don't know. All of this will unfold as he grows and develops in the coming months and years.
As he turns one, we are asking for your help to give Rupert the best possible chance to achieve all that is possible for him in the years to come. He needs ongoing, specialist care, treatments and therapies, many of which are not available through the NHS or which have huge waiting lists. Early interventions now, with physiotherapy, speech therapy and play therapy, as well as from specialist carers, can make a huge difference to what he will be able to achieve in later life.
However, all of this costs a great deal of money, which is why we have set up www.IamRupert.co.uk This Trust will be run by independent Trustees and has its own bank account. Every single penny raised will be used wisely on treatments, equipment and other support and resources that we cannot access through the NHS.
The best advice we were given after Rupert was born is that whatever happens, "he will be Rupert". If he could, we are quite sure that he would himself be shouting from the roof tops "I am Rupert, watch me go."
Today, we are asking for your help in supporting Rupert to achieve all that is possible for him in the years to come.
With all our hearts, thank you.
Updates appear here
Rachel Carter started crowdfunding
Leave a message of support
Guy, Ruth, Imogen & Sophie Dunn
Jan 12, 2017
We truly wish you the very best. xxxx
Jan 10, 2017
We have not yet been able to meet Rupert in person, but are making this contribution to his fund to help him fly and sending much love with it, to Siobhan, Paul, Felix and Rupert. R & M XXXX
Jan 9, 2017
A belated (but very heartfelt) happy birthday and Christmas pressie. You will always have our support ;) Love R, L, M & S xxxx
Jan 9, 2017
I love following your story on FB - wishing all of you, all the very best. X
Dec 26, 2016
Happy Christmas Ru-Pop and the gang! Lots of Love Aunty Suse xx
The Shalford Copsons
Dec 26, 2016
With our best wishes at this special time of year XX
Nana and grandad
Dec 25, 2016
With love and blessings from Nana and Grandad xxx
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About the fundraiser
The new Trust, I am Rupert, has been set up by Rupert's Godparents - Claire, George and Rachel to raise funds for Rupert's ongoing care, treatment and support.
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