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Closed 23/09/2017
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Weʼve raised £0 to raise money for research in IgA nephropathy, also known as Berger's disease. Very little is known about it.
- Dorset
- Closed on Saturday, 23rd September 2017
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IgA nephropathy, also known as Berger's disease, is a kidney disease that occurs when an antibody called immunoglobulin A (IgA) lodges in your kidneys. This results in local inflammation that, over time, may hamper your kidneys' ability to filter wastes from your blood.
There is very little research compared to all other kidney disease. There is very little known about all possible side effects that is not documented. I received different information from different consultants/hospitals.
There is only 1 tablet for this illness.. to my knowledge and if your body does not tolerate it then it won't slow down the illness.
I can't tolerate high doses so deterioration is at a faster rate.
I want to raise money solely for IgA nephropathy research and more options of treatment.
Thank you for your support.
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Rich Young
Dorset
I was diagnosed in 2012 and had it for 30+ years. Very little is known about it in the UK. More research and treatment is needed. I felt very depressed by different information given by different specialists. Thank you for your support.