ENOLA WRIGHT is crowdfunding
Weʼre raising £5,000 to establish Insulinoma Charity UK (ICUK)
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https://insulinomacharityuk.org/
I am thrilled to share the news that Insulinoma Charity UK (ICUK) has now earned its official registration with the Charity Commission! Registered Charity Number 1204926.
This pivotal achievement strengthens our commitment to advance the awareness and understanding of insulinomas.
All the money raised and continued donations will help to create a significant impact to achieving ICUKs ten essential objectives that form the core of the Charity’s mission.
Insulinoma Charity UK Objectives:
1. Definitive Information Source: Establish ICUK as the go-to source for accurate insulinoma information, ensuring patients and caregivers have access to reliable and updated resources.
2. Unified Platform: Centralise information on insulinomas, proinsulinomas, Insulinomatosis, and NIPHS to provide comprehensive data and support.
3. Patient-Led Research: Champion research that is driven by the needs and experiences of patients and publish the findings of the pioneering Insulinoma Research Project.
4. Future Planning: Develop a comprehensive 2–3-year business plan outlining ICUK's aspirations, aims, objectives, and future plans to ensure strategic growth.
5. Standardising Hospital Procedures: Advocate for the 72-hour fast to be standardised across all UK hospitals to enhance the diagnosis and treatment processes.
6. FreeStyle Libre Campaign: Lead a campaign advocating for FreeStyle Libre prescriptions for those with suspected and diagnosed insulinoma, ensuring accurate and efficient monitoring.
7. Regular Updates: Launch a bi-monthly insulinoma eNewsletter to keep the community informed, connected, and engaged.
8. Collaborations: Foster partnerships with key organisations including Neuroendocrine Cancer UK, ENETS, UKI NETS, and AMEND to enhance support and resources for patients.
9. Fundraising Initiatives: Actively fundraise and apply for seed funding to bolster the charity’s growth, outreach, and impact.
10. Charity Administration: Draft a person specification for an experienced, part-time charity administrator to drive ICUK and its fundraising activities forward.
With these objectives as the foundation, ICUK is positioned to significantly advance the scope, reach, and effectiveness of insulinoma awareness, research, and support across the United Kingdom.
.Thank you for your donation and for your continued support.
Kindest regards
Enola Wright
Find out more about insulinomas: www.insulinoma.uk
Enola Wright 2121st Points of Light Award in recognition of voluntary work for Insulinoma Support Network’, providing support, advice and online resources for people with insulinoma, a rare tumour of the pancreas. 2121st Point of Light
Enola Wright crowned one of the 500 Coronation Champions launched by Royal Voluntary Service with Her Majesty The Queen Consort in recognition of her voluntary work for the Insulinoma Support Network. Coronation Champion 2023
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Updates
5
- 5 months ago
ENOLA WRIGHT
5 months ago
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- 6 months ago
ENOLA WRIGHT
6 months agoI am delighted to announce that we now has a team of 12 twelve volunteers who will be working towards establishing the charity and meeting our objectives. At the heart of our collective effort lies our shared experience of living with an insulinoma. This common ground unites us, providing a foundation of understanding and empathy upon which we build our charity. Together, we are not only creating a support network but also a family bound by mutual experiences and a shared vision for a better future for all those affected by an insulinoma.
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- 8 months ago
ENOLA WRIGHT
8 months agoI am thrilled to share the news that Insulinoma Charity UK (ICUK) has now earned its official registration with the Charity Commission! This pivotal achievement strengthens the commitment to advance the awareness and understanding of insulinomas. Ten essential objectives have been outlined to steer ICUK's initiatives. These include, to be the definitive source of insulinoma information, to lead insulinoma research, and to advocate for the diagnostic 72-hour fast to be standardised. Thank you for your kind donations to reach this milestone.
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ENOLA WRIGHT started crowdfunding
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Supporters
31
Hill Bower
Sep 28, 2023
Fantastic work, well done 👏
£40.00
Pete Blomley
Sep 27, 2023
It is very important that this charity can focus attention on those of us affected my insulinomas. Many thanks for setting this up. Let's work together as best we can to make a positive difference.
£100.00
Anonymous
Sep 15, 2023
Wishing you all the best for achieving your goal Enola. Keep up the good work!
£40.00
Coralie
Sep 11, 2023
Good luck raising the money and awareness.Love Coralie
£40.00
Charlotte Snowden
Sep 4, 2023
Fantastic work, well done x
£40.00
Anonymous
Sep 4, 2023
Good luck!Rhonda x
£25.00
Martin & Laura
Sep 3, 2023
£50.00
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Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.
The page owner is responsible for the distribution of funds raised.
About the fundraiser
ENOLA WRIGHT
Enola, who was diagnosed with a malignant insulinoma in 2007, has devoted 16 years, voluntarily, to creating and managing the Insulinoma Support Network. It is the main single source of information and knowledge for those affected by insulinomas, a rare neuroendocrine tumour.