Joshua is 12 years old and has CLN6 Battens, which is an incredibly rare genetic condition. He doesnt have many years left with us. He requires help with feeding and moving and requires a hoist for transfers and does all of this with a huge smile on his face.

Josh is my Godson and I am jumping out of a plane to raise money primarily to help with memory making whilst we are still blessed to have him here on earth with us. We want Josh, his brother Andy, and his parents, Ali and Jon, to have fun together doing amazing things in the short years left.

We have booked the skydive, which I am doing with Ali (Joshs mum) for the 30th June (subject to weather cancellations). I have never done this before and I am bricking it!