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Sue Chamberlayne raised £9,046 from 332 supporters

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Closed 07/06/2017

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£9,046raised of £25,000 target by 332 supporters

    Weʼve raised £9,046 to Keep Pearl's Parents by her Side

    Brighton, United Kingdom
    Funded on Wednesday, 7th June 2017

    What is crowdfunding?

    Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.

    The page owner is responsible for the distribution of funds raised.

    Story

    Pearl is a 10 year old girl fighting a BIG battle against cancer. She is one of the 30 or fewer children in the UK each year diagnosed with Ewing's Sarcoma a rare and aggressive form of bone cancer.Her situation is more cruelly random given that this cancer normally affects teenage boys.

    Pearl is a beautiful, bright little girl with huge courage. Since diagnosis she has tried to maintain her sense of humour, renaming her tumours "Vumps" and using her Nerf Gun to defend herself against anyone who threatens her with something she doesn't like (don't mention cannulas)!

    Pearl was diagnosed in November and It turned her and her family's life upside down. Within a week Pearl changed from being an energetic girl with a love of aerial dance into a wheelchair user. At diagnosis a tumour had already grown into the size of a melon inside her small frame squashing many of her vital organs. Tumours then quickly spread to her legs, her pelvis and her lower vertebrae, making it too painful for her to walk.

    She is undergoing the most aggressive form of chemotherapy it is possible to endure and trying with all of her might to manage all of the distressing side effects, including opportunistic infections that strike and threaten her health still further.

    However, there is still a chance that Pearl can be cured long term and this is what she is fighting for every single day and we want to help in every way we can with your help.

    Her parents Rachel and Jamie have made a vow to be with her "every step of the way" and have stayed true to their word. They have given up work to be with her and look after Pearl's brother Milo aged 8. The family virtually live and move between the various specialist hospitals involved in her care. She takes heart from their presence and it gives her the strength to carry on.

    Will you join with us to help them keep their vow to continue to stay with Pearl?

    Updates

    20

    • Sue Chamberlayne2 years ago
      Sue Chamberlayne

      Sue Chamberlayne

      2 years ago

      WOW! Special thanks to the brave marathon/mud run/mini mile fundraisers - you are all so amazing! Radiotherapy starts at the beginning of May in addition to chemotherapy. Having both at the same time will be very tough and extremely tiring for Pearl, and means that we will be away from home a lot more. Pearl has been staggered at the efforts and generosity shown by everyone and I regularly read her your lovely messages of support. You help us every day to keep together and to keep strong. Thank you so much, Rachel BB (Pearl's mum)

      Share this update to help us raise more

    • Sue Chamberlayne2 years ago
      Sue Chamberlayne

      Sue Chamberlayne

      2 years ago

      Good Luck to Rae, running the Brighton Mini Marathon today and raising money for Pearl and family - you are a super star!! Thank you so much! xx

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    • Sue Chamberlayne2 years ago
      Sue Chamberlayne

      Sue Chamberlayne

      2 years ago

      We'll be cheering on Kath, Claire and Susan this Sunday when they run the Brighton Marathon. They will all be wearing Pearl's favourite colour - electric blue! Thanks so much to these amazing ladies for training so hard and supporting Pearl and her family xx

      Update from the Page owner

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    2 years ago

    Sue Chamberlayne started crowdfunding

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    Page last updated on: 6/6/2017 10:55 AM

    Supporters

    332

    • Anonymous

      Anonymous

      Jun 6, 2017

      £30.00

    • Marc Gall

      Marc Gall

      Jun 5, 2017

      Not a lot but I'm hoping it helps.... we're working hard to help our friend on the Debbie Baker page... to many sad stories... best of luck 💪🏻🙏🏻

      £10.00

    • Andy Harris

      Andy Harris

      May 31, 2017

      Just a little something. My mum and sister popped some money in too. Loads of love. Andy

      £30.00

    • Anonymous

      Anonymous

      May 26, 2017

      Our thoughts are with you all x

      £20.00

    • Diane Davies

      Diane Davies

      May 19, 2017

      sponsorship for Ruth and Kalel on their 'mud run' in aid of Pearl and her wonderful family, well done both of you, Much love from Aunty Di

      £25.00

    • Ruth Bartlett

      Ruth Bartlett

      May 14, 2017

      This is the sponsorship money Kalel raised for his Mud Run. Many thanks to all those who supported him. Love to all x

      £190.00

    • Veronique Wilson

      Veronique Wilson

      May 8, 2017

      Dear Pearl, Rachel, Jamie and Milo,Friends, relatives and colleagues sponsored me to donate my hair to the Little Princess Trust and thanks to them I can make this donation.Much love, Véronique

      £200.00

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    About Crowdfunding
    About the fundraiser
    Sue Chamberlayne

    Sue Chamberlayne

    Brighton, United Kingdom

    We have seen what a difference it makes to Pearl to have her family's love, comfort and reassurance around her. Seeing Rachel, Jamie's and Milo's love, commitment and care in action has made us determined to do all we can to support the family to be together and Pearl get better.

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