The reason for this, is to raise awareness of this rare and curel illness as well as to hopefully raise enough money to be able to fund some of the much needed equipment (elect. wheelchair etc.) as once her daughter moves out in a few month (to join the Army) she will be virtually housbound.
Unfortunatley as this is a rare condition, there has been absolutely no help at all, anywhere. As Kim is not completely paralysed for example she does not qualify on the NHS for a powered wheelchair.