Weʼre raising £100,000 to fund treatments unavailable on the NHS for twins, Lennon and Layla Coady
- South Benfleet, United Kingdom
- Disability support
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On 12th July 2014 Lennon and Layla arrived at just 28weeks gestation, weighing 2.10lb and 3lb. Both were admitted to the Neonatal Intensive Care Unit (NICU) where they remained until they were strong enough to be moved into the Special Care Baby Unit, some five weeks later. Lennon spent a total of seven weeks in hospital with Layla staying for ten weeks.
During their time in the NICU both Lennon and Layla were subject to regular body scans to check that their tiny organs were developing correctly. It was as a result of this that we were advised quite early on that ultrasound scans for both Lennon and Layla had shown that they had developed bleeds to their brains. Layla has been diagnosed with global development delay and a recent MRI scan has confirmed that Layla has PVL (damage to the brains white matter). Layla's consultant has stated she has mild cerebral palsy primarily affecting the left side of her body. Layla is currently able to sit, crawl and pull to stand and is able to walk with assistance.
Recently, after an appointment with a geneticist from GOSH we learned that Layla has a chromosome 6 deletion. This is an extremely rare genetic disorder in which some of the genetic material that makes up one of the 46 chromosome – specifically chromosome 6 in this case – is missing.
There are less than 100 reported cases in the world of a chromosome 6p deletion and
Layla has the only reported case of the genetic strand that is missing in this case in the world! She is unique. GOSH have advised increased therapies to allow Layla the opportunity to achieve her maximum potential in all areas.
Lennon's consultant has stated that he has cerebral palsy affecting his lower limbs - spastic diplegia. He is a good candidate for the SDR Operation which is not funded by the NHS. This would enable him to walk independently. The cost of this operation is approximately £38,000, aftercare and physiotherapy on top makes our overall target to raise at least £100,000.
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Tokio Millennium Re AG UK Branch
Feb 14, 2018
Well done on behalf of Tokio Millennium Re AG UK Branch
Tokio Millennium staff
Feb 14, 2018
Well done on raising money for a great cause on behalf of staff at Tokio Millennium Re AG UK Branch.
Dec 18, 2017
My Christmas card donation for the beautiful twins xx
Nov 8, 2017
Just s little donation for you guys from a collegue if Roxanne
Sep 28, 2017
Good Luck with your run Nicola - I hope all the training pays off!
Sep 20, 2017
Keep going Nicola, this donation is sponsorship for Brian"s run
Sep 15, 2017
Good luck in achieving your target. This is a donation on behalf of a local club.