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Nicola Dunn raised £1,005 from 16 supporters

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Closed 30/06/2018

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£1,005raised of £100,000 target by 16 supporters

    Weʼve raised £1,005 to fund treatments unavailable on the NHS for twins, Lennon and Layla Coady

    South Benfleet, United Kingdom
    Funded on Saturday, 30th June 2018

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    Story

    On 12th July 2014 Lennon and Layla arrived at just 28weeks gestation, weighing 2.10lb and 3lb. Both were admitted to the Neonatal Intensive Care Unit (NICU) where they remained until they were strong enough to be moved into the Special Care Baby Unit, some five weeks later. Lennon spent a total of seven weeks in hospital with Layla staying for ten weeks.
    During their time in the NICU both Lennon and Layla were subject to regular body scans to check that their tiny organs were developing correctly. It was as a result of this that we were advised quite early on that ultrasound scans for both Lennon and Layla had shown that they had developed bleeds to their brains. Layla has been diagnosed with global development delay and a recent MRI scan has confirmed that Layla has PVL (damage to the brains white matter). Layla's consultant has stated she has mild cerebral palsy primarily affecting the left side of her body. Layla is currently able to sit, crawl and pull to stand and is able to walk with assistance.
    Recently, after an appointment with a geneticist from GOSH we learned that Layla has a chromosome 6 deletion. This is an extremely rare genetic disorder in which some of the genetic material that makes up one of the 46 chromosome – specifically chromosome 6 in this case – is missing.
    There are less than 100 reported cases in the world of a chromosome 6p deletion and
    Layla has the only reported case of the genetic strand that is missing in this case in the world! She is unique. GOSH have advised increased therapies to allow Layla the opportunity to achieve her maximum potential in all areas.
    Lennon's consultant has stated that he has cerebral palsy affecting his lower limbs - spastic diplegia. He is a good candidate for the SDR Operation which is not funded by the NHS. This would enable him to walk independently. The cost of this operation is approximately £38,000, aftercare and physiotherapy on top makes our overall target to raise at least £100,000.

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    Nicola Dunn

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      1 year ago

      Nicola Dunn started crowdfunding

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      Page last updated on: 6/29/2018 8:33 PM

      Supporters

      16

      • Richard Webb

        Richard Webb

        Jun 29, 2018

        Good luck with the fundraising. I'm donating in support of NYCC colleagues who undertook the 3 Peaks Challenge on 8 June

        £30.00

      • Tokio Millennium Re AG UK Branch

        Tokio Millennium Re AG UK Branch

        Feb 14, 2018

        Well done on behalf of Tokio Millennium Re AG UK Branch

        £150.00

      • Tokio Millennium staff

        Tokio Millennium staff

        Feb 14, 2018

        Well done on raising money for a great cause on behalf of staff at Tokio Millennium Re AG UK Branch.

        £150.00

      • Elena Culleton

        Elena Culleton

        Dec 18, 2017

        My Christmas card donation for the beautiful twins xx

        £10.00

      • Elissa Mccafferty

        Elissa Mccafferty

        Nov 8, 2017

        Just s little donation for you guys from a collegue if Roxanne

        £20.00

      • Charles Longden

        Charles Longden

        Sep 28, 2017

        Good Luck with your run Nicola - I hope all the training pays off!

        £50.00

      • John Ferguson

        John Ferguson

        Sep 20, 2017

        Keep going Nicola, this donation is sponsorship for Brian"s run

        £50.00

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      About Crowdfunding
      About the fundraiser
      Nicola Dunn

      Nicola Dunn

      South Benfleet, United Kingdom

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