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Layla White raised £1,948.7 from 57 supporters
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Closed 01/12/2016
Weʼve raised £1,948 to Donate to Loeys-Dietz Syndrome Foundation to raise awareness
- Romford, United Kingdom
- Funded on Thursday, 1st December 2016
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Story
A few years ago, a very good friend of mine was diagnosed with a very rare genetic disease which means he's in constant pain and will face heart and spinal surgery for his whole life.
There are hardly a handful of doctors in the world, let alone the UK who understand his condition which makes treatment and support of his symptoms very difficult.
Lee is an unbelievably strong and brave man. I can't begin to imagine how hard it must be and yet positivity and lust for life shines through his beautiful soul.
I'm going to train for a triathlon to help raise money and awareness and to help make the lives of those with it easier.
Updates
4
- 8 years ago
Layla White
8 years agoPs Back to the main reason for all the hard work... Your generous gifts will be going to a wonderful cause. I'm so blessed that you are all in an inderect way helping Lee. I had a monent on the bike where I felt exhausted and my legs were burning and I remembered..." Lee....Man up Layla" Lee and willow , I love you loads. Xxxx
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- 8 years ago
Layla White
8 years agoSooo...my final update! (Hurrah, I hear you say!) I l am very proud to say I finished my first tri! After a very wobbly start in the pool (I nearly quit 4 lengths in), I had a good chat to myself and pushed on. I'm so happy that I did! Physically and emotionally challenging but I would recommend it to anyone who's up for a challenged. Wonderful support and atmosphere from my fellow racers and my wonderful friends and family who came to watch. Needless to say, I cried at the end! Sooooo... london tri next.... who's up for it?! Happy Sunday 😘😘
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- 8 years ago
Layla White
8 years agoBlimey! There's some love going on here! Thank you all so much (to the anons too!) for the donations... I didn't think I'd raise this much; its very overwhelming. A quick update... I picked up an injury just over a week ago which is lovely, all from trying to change my run from "running like a girl" to something a bit more productive. It's quite painful taking the stairs but oddly enough doesn't seem to hurt when running/cycling/swimming so onwards and upwards! If you see me hobbling around, you know why! Have a lovely week all xx
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Layla White started crowdfunding
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Supporters
57
Kevin Brown
Nov 12, 2016
Well done Layla and just like you to be doing things for others. Sorry I'm late to the donation party.Kev
£50.00
Paul
Nov 9, 2016
Outstanding achievement! Congratulations
£30.00
Tel Willis
Oct 25, 2016
Well done Layla. So proud of you 😘
£30.00
Liz Hassett
Oct 16, 2016
Such a great cause and I think you're pretty great too!! Massive congrats on your achievement today x
£30.00
Neil Clark
Oct 16, 2016
Awesome effort and great cause. Well done and I look forward to swimming with you in Shepperton lake next Spring :)
£30.00
Mark clayton
Oct 16, 2016
Well done gorgeous. You've done so well I bet everyone is so proud. Lee has a great friend xLove Tails and Cat
£100.00
Hannah & Lee
Oct 16, 2016
Layla, you are one in a million and we are very lucky to have a loving and thoughtful friend like you. Overwhelmed and very grateful for you raising awareness of LDS. See you at the finish line xxxxxx
£50.00
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