I'm raising £5000 to help Becks with ongoing treatments and therapies not provided by the NHS
Organised by Becks Ramagge
Story
We are hugely grateful to have the support of Sam Frost's family in raising funds for Rebecca(Becks) in his memory. With previous monies raised which Sam helped with by running a half marathon and other such events, we managed to buy a very specialised wheelchair for her. We are once again raising funds for the treatments that enable her to get into the wheelchair, treatments and other therapies that are not available on the NHS.
These treatments & therapies include:
Weekly Physio therapy, Saline therapy (including all medical supplies) and privately prescribed medications to name but a few.
As well as further adaptations to her specialised wheelchair to make it more comfortable and less painful for her legs.
About Becks
Becks is in her 16th year of illness following the HPV vaccination and being diagnosed with very severe ME (Myalgic Encephalomyelitis) . Her symptoms are numerous and complex and any one of them difficult to cope with on a short term basis, let alone everyday of every year. Becks is predominately confined to her room, unable to leave her bed apart from more recently being able to get into her new specialised wheelchair. She is hypersensitive to light, sound and smell although a little less so than before due to privately prescribed treatments. Becks needs a tube to help her with feeding, water & medications and has to have help with even the simplest of tasks throughout the day and night. She never gives up and strives hard every day to be positive and find things however small to do to prove to herself that she can achieve things.
About ME (Myalgic Encephalomyelitis)
‘ME/CFS is a biological, neurological illness. Patients have a variety of abnormalities that affect multiple systems, such as:
* Immune and neuroendocrine;
* Cellular metabolism; and
* Autonomic system regulating blood pressure and heart rate.’
An expert in ME, Sr David Strain is recently quoted as saying:
As everyone with ME knows, it’s a job in itself to find a medical professional who understands that ME is *not* a psychological condition. As the biomedical nature of ME is not taught in medical schools, the excellent doctors who do understand ME are few and far between. ME sufferers should not be subjected to the huge, added stress of being involved in this lottery when trying to access appropriate medical care.
There is still no hospital ward in England capable of managing patients with the illness, and said it was a “travesty” that some medical professionals did not believe it was a real physical condition.’
For these reasons alone we are left in the main to fight for a better understanding of this awful illness and to raise funds to get Becks a better quality of life.
To keep following Becks' journey, follow our Facebook page ME - Rebecca's Fight
