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Steven Harton raised £2,070 from 82 supporters
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Closed 18/03/2017
Iʼve raised £2,070 to get a helmet fitted for our son who has sever Plagiocephaly and brachycephaly (flat head syndrome )
- Newcastle upon Tyne, United Kingdom
- Funded on Saturday, 18th March 2017
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Story
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We first noticed a change in Mason's head shape at around 3 months of age, it began with a little flattening at the side of his head and we mentioned this to our health visitor who advised that this would be fine and would correct itself, this did not stop us worrying so we tried everything we could to ensure we took the pressure off the flat spot by purchasing a special babymoov lovenest pillow which we used daily where ever we went, this has been created to make sure pressure is distributed evenly across the whole of the skull. We also tried various forms of repositonal therapy throughout the day making sure Mason was never on his flat side of his head hoping it would round out without further treatment.
As the weeks went by we then started to notice Mason would only ever turn his head to the left hand side during playtime, when he slept and even when held upright. After many doctors appointments and two trips to A&E Mason was diagnosed with torticollis (tight neck muscles) and as a result we were also informed he has severe Brachycephaly (Flat Head Syndrome).
Mason received physiotherapy fortnightly to correct his torticollis which they thought in turn would help with his plagiocephaly but it has continued to get worse. We contacted the Steeper Clinic in Leeds who recommended STARband helmet treatment to begin as soon as possible and we have an upcoming appointment to get Masons helmet measured and ordered on the 22/02/17. It will be fitted 2 weeks after this date as currently the helmets are only made in the USA and shipped over.
After much research we found that the UK usually advise that this condition will resolve itself up to the age of 18 months, this is not always the case and there is no funding on the NHS to treat Flat Head Syndrome as it is considered to be a cosmetic issue, however other countries such as the USA recognise this as a medical issue with studies showing amazing results.
Updates
6
- 8 years ago
Steven Harton
8 years agoOnce again I would like to THANK everyone who help us reach our target and help us get the helmet for the Mason.. it's already showing signs that it's working back at Leeds on Tuesday to find out more but first few weeks are showing good signs and that's all down to all the support you have all given us.. so THANK YOU
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- 8 years ago
Steven Harton
8 years agoWell today was the day Mason got his new crash helmet... He was such amazing little boy and took it all in his stride.. just want to say a Big THANK YOU again for everyone who help with donating and helping us get the helmet you can still donate now as extra money goes to help headstart4babies to raise awareness of plagiocephaly and brachycephaly, conditions which are being diagnosed in an increasing number of babies.
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- 8 years ago
Steven Harton
8 years agoTHANK YOU to everyone who has helpped us get our target you can still donate all donations going to Hadstart4Babies which aims to raise awareness of plagiocephaly and brachycephaly, conditions which are being diagnosed in an increasing number of babies. Plagiocephaly and brachycephaly can be treated using a non-invasive helmet andtreatment is most effective between the ages of four and 12 months, as that is when the skull is experiencing its most rapid growth and is at its most malleable. Treatment in the UK costs a maximum of £2,500.
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- 8 years ago
Steven Harton
8 years agoWell thank you to everyone that has got us past the half way mark means so much to us all... in the photos you can see the chart of how bad Mason head is and the docs just telling us that it may only going back to the top of the yellow line... As Me and Daniella have come to terms with not only the helmet for a year but the fact his head may never go back to normal.. Mason is still a normal amazing little boy and he takes on anything that comes his way with his massive smile and cheeky look on his face...
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Steven Harton started crowdfunding
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Supporters
82
Claire Harton
Mar 10, 2017
Love you all :)
£30.00
Laura Wilson
Mar 4, 2017
Mason ur a little cool dude ... Hope u are a good boy while helmet gets fitted ❤️
£10.00
Michelle Charlton
Mar 4, 2017
Wishing you all the very best. Big hugs little man xxx
£20.00
Paul Bennett
Mar 3, 2017
Hope the little man's ok mate
£10.00
Ben Dalby
Mar 3, 2017
All the best mate
£47.00
Dean Wallis
Mar 2, 2017
Sending so much love!
£10.00
doreen wright
Mar 2, 2017
Lots of love, hope you reach yr target, good luck xxx
£20.00
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