106%
£5,343raised of £5,000 target by 179 supporters

Weʼre raising £5,000 to help Leah Goss who suffers from PANDAS Syndrome and NMDA Encephalitis, benefit from intensive rehabilitation for an acquired brain injury.

Time left
19 days to go

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Story

To remember our beautiful daughter Erin who passed away last year from Encephalitis and became an Organ Donar Angel, we will be taking part in a New Years Day Superhero Dip and raising money to help another local girl Leah Goss currently suffering from Encephalitis. here is Leah's story ...
Leah fell ill almost 2 years ago. Her symptoms were acute and psychiatric in nature. Within weeks she had gone from a happy, care free child, to being totally debilitated by her illness and housebound. Drs initially diagnosed PANDAS, (Paediatric Autoimmune Neuropsychiatric Disorder Associated with Strep).
Within a few months, Leah's condition deteriorated rapidly. She was barely able to walk or talk. Leah was hospitalised and further tests carried out. These showed she was critically ill with NMDA Encephalitis, a rare but potentially fatal autoimmune disease, which causes swelling of the brain.
Emergency infusions of IVIG were given which made huge improvements and thankfully Leah is walking and talking again. Unfortunately the benefits fade over time and Leah had only short relief from the psychiatric symptoms, she has had five rounds of this aggressive treatment.
Leah was referred to specialists in London and America who have been crucial in paving a way forward. Leah is now embarking on their suggested treatment plan involving several medications and monthly high dose steroid pulse treatment, which targets reducing inflammation on the brain. The consultants have confirmed Leah has an Acquired Brain Injury as a result of the encephalitis. We are hopeful the new treatment will bring some improvements but Leah will require intensive rehabilitation involving both inpatient and long term follow up therapies. All current fundraising is going towards these costs.
Leah struggles daily with acute anxiety, fatigue, headaches, visual disturbances, OCD, and much more. She is very different in personality to the child she was pre-illness and rehabilitation is essential.
Thank you x

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Updates

2

  • susan bonar

    susan bonar

    16 days ago

    susan bonar

    We did it ..... target exceeded, thank you so much for honouring Erin and allowing her little light to keep on shining!!! Your generosity has been outstanding, I hope you all enjoyed the day, see you all next year!!

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  • susan bonar

    susan bonar

    a month ago

    susan bonar

    Thankyou so much to everyone who has donated so far, we are already over the £2000 mark and that doesn't include the £1000 or more raised by very hardworking Elves! This just shows how much love there is for Leah and for Erin and we thankyou so much for keeping them both in your minds at this time of year. Love you all ❤

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2 months ago

susan bonar started crowdfunding

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179

  • Stephen Duffy

    Stephen Duffy

    Jan 22, 2017

    X

    £30.00

  • Anonymous

    Anonymous

    Jan 21, 2017

  • Anonymous

    Anonymous

    Jan 21, 2017

    From the Ellerslies

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