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susan bonar raised £5,358 from 180 supporters.

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Closed 10/02/2017

107%
£5,358raised of £5,000 target by 180 supporters

    Weʼve raised £5,358 to help Leah Goss who suffers from PANDAS Syndrome and NMDA Encephalitis, benefit from intensive rehabilitation for an acquired brain injury.

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    Funded on Friday, 10th February 2017

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    Story

    To remember our beautiful daughter Erin who passed away last year from Encephalitis and became an Organ Donar Angel, we will be taking part in a New Years Day Superhero Dip and raising money to help another local girl Leah Goss currently suffering from Encephalitis. here is Leah's story ...
    Leah fell ill almost 2 years ago. Her symptoms were acute and psychiatric in nature. Within weeks she had gone from a happy, care free child, to being totally debilitated by her illness and housebound. Drs initially diagnosed PANDAS, (Paediatric Autoimmune Neuropsychiatric Disorder Associated with Strep).
    Within a few months, Leah's condition deteriorated rapidly. She was barely able to walk or talk. Leah was hospitalised and further tests carried out. These showed she was critically ill with NMDA Encephalitis, a rare but potentially fatal autoimmune disease, which causes swelling of the brain.
    Emergency infusions of IVIG were given which made huge improvements and thankfully Leah is walking and talking again. Unfortunately the benefits fade over time and Leah had only short relief from the psychiatric symptoms, she has had five rounds of this aggressive treatment.
    Leah was referred to specialists in London and America who have been crucial in paving a way forward. Leah is now embarking on their suggested treatment plan involving several medications and monthly high dose steroid pulse treatment, which targets reducing inflammation on the brain. The consultants have confirmed Leah has an Acquired Brain Injury as a result of the encephalitis. We are hopeful the new treatment will bring some improvements but Leah will require intensive rehabilitation involving both inpatient and long term follow up therapies. All current fundraising is going towards these costs.
    Leah struggles daily with acute anxiety, fatigue, headaches, visual disturbances, OCD, and much more. She is very different in personality to the child she was pre-illness and rehabilitation is essential.
    Thank you x

    Updates

    2

    • susan bonar

      susan bonar

      3 months ago

      susan bonar

      We did it ..... target exceeded, thank you so much for honouring Erin and allowing her little light to keep on shining!!! Your generosity has been outstanding, I hope you all enjoyed the day, see you all next year!!

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    • susan bonar

      susan bonar

      3 months ago

      susan bonar

      Thankyou so much to everyone who has donated so far, we are already over the £2000 mark and that doesn't include the £1000 or more raised by very hardworking Elves! This just shows how much love there is for Leah and for Erin and we thankyou so much for keeping them both in your minds at this time of year. Love you all ❤

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    4 months ago

    susan bonar started crowdfunding

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    Supporters

    180

    • Anonymous

      Anonymous

      Jan 26, 2017

      Hi Just a couple of late donations.Well done all.

      £15.00

    • Stephen Duffy

      Stephen Duffy

      Jan 22, 2017

      X

      £30.00

    • Anonymous

      Anonymous

      Jan 21, 2017

    About the fundraiser
    susan bonar

    susan bonar

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