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Richard Sansom raised £16,139.5 from 736 supporters
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Closed 02/05/2017
Iʼve raised £16,139 to Support Oliver's Bone Marrow Transplant Journey.
- Plymouth, United Kingdom
- Funded on Tuesday, 2nd May 2017
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Story
This amazing boy is called Oliver; he is 8 years old and is my nephew.
He has been recently diagnosed with (MDS) Myelodysplastic Syndrome. This is as a result of a very complicated genetic condition relating to his GATA2 gene, which may have accounted for some of the other issues he’s had to contend with since birth, predominantly his loss of hearing.
He is continuing to put a brave face on everything whilst going through his blood and platelet transfusions, to keep him going whilst a donor was being found.
They have found a 9/10 donor match. (Not perfect, but we are hopeful) Oliver will need to undergo a bone marrow transplant starting in January.
This will entail him moving to Bristol Hospital for 9 days of chemotherapy followed by living in an isolation ward for 3-4 weeks, before another 6 weeks or so of reduced isolation at Sam’s house, in which we pray it works and he can then return home.
Due to the complexity of this condition and the lack of understanding of it, this is just the start of his life long journey to recovery.
To help with his journey, I am looking for sponsorship/raffle prizes to assist Oliver and his family through this treatment, and for further attempts, should his treatment not work this time.
Also it will help awareness for the other children who have this extremely rare condition (4 only in the UK).
Updates
12
- 8 years ago
Richard Sansom
8 years agoA big thank you to one and all for your support. Oliver is progressing well at the moment and is working his way to ring that bell and get home. This is just thestart of his journey and this money wil l help support him and his family through this time. Once again many many thanks you are all wonderful people and have touched my heart with your kindness and generosity.
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- 8 years ago
Richard Sansom
8 years agoOliver has been discharged from ward 34 and is back in the CLIC Sargent Sam's House. After a number of worrying symptoms and many tests we are not 100% sure of what just happened but what we do know is Oliver is feeling better and his blood products have stabilized. In addition Oliver has remained up beat and focused on causing as much mischief as possible. The journey continues and memories continue to be made by all the inspirational people which are helping along the way. Thank you to all of you for your donations and kind messages Team B X
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- 8 years ago
Richard Sansom
8 years agoJust a quick update guys, unfortunately after a really good week following his birthday and visits from grandparents, Rob and Aunty Clare, Oliver has picked up an infection which has resulted in him having to return to ward 34 in the hospital for a few days to take on some antibiotics and other medication to fight it. Hopefully this is a minor blip and he will be back on track soon. Please keep sharing and caring as your wonderful support really does make a difference.
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- 8 years ago
Richard Sansom
8 years agoWell a slightly unexpected early start to the day do to Oliver unfortunately bringing up his feeding tube at 4.45 this morning, however that hasn't dampened his spirits. After a quick trip to the hospital to fit another, he was ready to enjoy his 9th Birthday in full. Daddy and Benjamin have been up for a couple of days which makes it even better. Thank you for all your lovely messages, videos and cards, it's time to open these presents and have some fun.
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Supporters
736
Matt Caves
Apr 21, 2017
£20.00
Anonymous
Apr 5, 2017
£10.00
Fiona Crook
Apr 3, 2017
£10.00
WM Darren Bothma & Mrs Sonia Bothma & Brethren from Lodge of St Simon 6376
Apr 1, 2017
WM Darren & Mrs Sonia Bothma held a ladies night on 11th Feb 2017 and on behalf of ourselves and Lodge of St Simon 6376 we raised charity monies and wish to donate £250 to this cause.
£250.00
Geoff Caves
Mar 28, 2017
Linda Birr-Pixton
Mar 25, 2017
With love and hope for Oliver from Wayne Wilson's Aunty Linda. xx
£50.00
The Jay's
Mar 15, 2017
You are fantastic Oliver, a true super hero. Thinking of you all.
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Richard Sansom
Plymouth, United Kingdom
Hi I'm Oliver's uncle. Married father of twins. I work for Relay Engineering Ltd as an adminstrator. In my spare time I'm head coach of tamar saracens youth rfc & also work in the clothing store for the Royal marine cadets. Enough about me; thank you so much for your support.