We did it!
Jason Lincoln raised £6,142.3 from 216 supporters
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Closed 04/10/2017
Weʼve raised £6,142 to help fund specialist equipment for Olivia including:- * Wheel chair * Rollator Walker * Rise and Recline chair * Wet Room
- Sheffield, United Kingdom
- Funded on Wednesday, 4th October 2017
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Story
We are looking to raise some specialist equipment for Olivia including a wheelchair, walker, reclining chair and potentially even a wet room for Olivia's home.
Who is Olivia and why is she our good cause?
Olivia was born on the 21st February 2001.
A healthy baby, weighing 8lb 2oz - hitting all the milestones expected with walking and talking etc.
At 3 years old, she started wearing glasses and was referred to the Sheffield Children's Hospital for regular check ups.
In late 2008, Olivia's parents noticed that Olivia was starting to suffer further loss of vision but assumed she may just need her prescription adjusting. However, during a routine appointment with her consultant, it was decided further tests were needed.
January 9th 2009 is a date that will haunt the family forever!
Olivia's consultant confirmed the devastating news that Olivia had a condition called Juvenile Batten Disease.
Juvenile Batten Disease is currently estimated to affect between 30-40 children and young people in the UK.
Progression of the disease differs from child to child but almost always follows the same pattern:
Firstly, loss of vision between ages 4-7, progressing until the child is completely blind, difficulties with concentration, short term memory and learning. From around 10 years onward, the next stage of the disease presents as epileptic seizures. During the teenage years mobility becomes more difficult and the onset of childhood dementia causes increased learning difficulties, confusion and anxiety.
Sadly, there is no current cure for the disease and the life expectancy of a child / young adult with the disease is 15 - 35.
Olivia is now 16, completely blind, on medication to control her seizures and starting to lose her mobility.
Despite this, Olivia loves dancing, is a huge Harry Potter fan and loves listening to music on her iPod, especially Westlife!
Please help us make Olivia's life that little bit more special.
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Updates
7
- 7 years ago
Jason Lincoln
7 years agoWhat do you think to our new rally logo?
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- 7 years ago
Jason Lincoln
7 years agoToday we introduce you to the first of our wrestlers - CARLOS COLON :)
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- 7 years ago
Jason Lincoln
7 years agoThe "El Bastardos" are now hard in training for the Rally...spending hours in the gym getting fit for the grueling test of strength and endurance. Over the next week or so, we will introduce you to each of our squad, outlining their vital statistics and specialist wrestling skills. If you like what you see, please dig deep and donate to our good cause... We thank you for your support :)
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Jason Lincoln started crowdfunding
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Supporters
216
The Bridge Inn , Thurgoland, Sheffield.
Oct 4, 2017
Donations from the staff and customers from The Bridge Inn, Thurgoland, Sheffield.
£310.30
Bernice Clayton
Oct 4, 2017
Well done the lads, very proud of you all and you had such good fun. You could write a comical book with ya fun stories!!! Xx
£40.00
Nigel Lockwood (G4S)
Oct 2, 2017
On behalf of G4S Match-It, thank you for letting us know about your fundraising for this very special cause
£500.00
Jen Leo
Sep 30, 2017
£10.00
Jo Mirza
Sep 29, 2017
Well done to you all for reaching your target! Am still traumatised by the spray tan pics! 😬😬😬Wishing you & Olivia much love, Jo (Mike & Sarah's friend) X
£10.00
Kirsty Young
Sep 28, 2017
Great cause, well done!
£30.00
David Joy
Sep 27, 2017
Good luck Jake, btw you look great in that outfit 😂. All the best David, Jennie and the Groovy Gang x
£20.00
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About CrowdfundingAbout the fundraiser
Jason Lincoln
Sheffield, United Kingdom
We are 8 friends about to embark on this year's Screwball Rally. In 2 themed cars, costing less than £600 each, we will be traveling over 3000 miles, through 9 countries over 5 days. Whilst our trip is fully self funded, we are hoping to raise £1 per mile for Olivia.