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Prize Management Ltd raised £260 from 2 supporters
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Weʼve raised £260 to Help Jackson who is terminally ill with Infantile Krabbes Disease. Play Spot the Ball to WIN or simply please donate. Thank you
- Wickford, Essex, United Kingdom
- Funded on Sunday, 31st July 2016
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Please help Jackson Smile.
Just after Jackson Garwoods first birthday in August 2015 he was diagnosed with early infantile Krabbes disease. Jackson, like other babies with Krabbes was born apparently healthy and hit all the normal milestones that you expect in the first 6 months of life with no sign that anything was wrong. It was shortly after this time that the condition started to take hold, and he began to gradually lose key skills. Krabbes is classes as a rare disease effecting 1 in 100,000, it is often misdiagnosed.
Most of you will never have heard of Krabbes. The disease (also called globoid cell leukodystrophy) is a degenerative disorder that affects the nervous system. It is caused by the shortage (deficiency) of an enzyme called galactosylceramidase. This enzyme deficiency impairs the growth and maintenance of myelin, the protective covering around certain nerve cells that ensures the rapid transmission of nerve impulses.
Unfortunately there is no cure for Krabbes and there is no medical intervention that can prolong Jacksons life. Most babies with this condition become angels some time around their second birthday. Before this time, Jacksons muscles will continue to weaken, affecting his ability to move, chew, swallow, and breathe. There is also a possibility that he will experience vision loss and seizures.
Over the next few months, Jackson will need specialist equipment to help aid his day to day life but before then his parents, Rebecca and Darren want to make Jackson smile and laugh as much as they can.
Jackson loves life, he loves animals, puppets, the "odd" chocolate ice cream! He laughs wildly and freely and our mission is to raise as much as we can for Jackson and his family.
PrizeXtra is dedicating all proceeds from our Charity Competition for the month of June 2016 to Jacksons Smile. Please play spot the ball to WIN PRIZES at www.prizextra.com or simply donate.
Please help us raise as much money as we can for Jackson X
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Prize Management Ltd started crowdfunding
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Jul 1, 2016
22 Entries into our PrizeXtra charity competition for Jacksons Smile
Jun 30, 2016
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