June is CDH awareness month. We are hoping to raise £500 for the CDH UK by CDH Awareness Day on 28th June.
Never heard of CDH? Neither had we, until our little boy was diagnosed with it at our 20 week scan.
CDH is a life threatening condition affecting 1 in 2,250 babies. It occurs when some or all of the digestive organs herniate into the chest cavity, restricting the development of the lungs. The only cure is life saving surgery as soon as possible after birth. Life expectancy for babies with CDH in the UK is 50%.
It's every parent's worst nightmare to hear "there's a problem with your baby". CDH UK help provide vital information, advice and support to parents at every step of the way.
By raising funding and awareness we can help get the information out there about CDH and make sure no parent has to face this without support.
For more information about CDH and the work that CDH UK do to help parents, go to www.cdhuk.org.uk
For a personal account of what it's like to be a CDH parent, see my blog at www.rexsfight.wordpress.com
Thank you x