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Rusty Screws raised £2,815 from 83 supporters

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Closed 29/09/2017

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£2,815raised of £2,500 target by 83 supporters

    Weʼve raised £2,815 to Support a colleagues poorly child by completing the 'Wild Warrior' obstacle race

    Ranby, United Kingdom
    Funded on Friday, 29th September 2017

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    Story

    July 2010, Eleanor Rose Blinstone was born. She was a very, very poorly little girl, Doctors didn’t know if she would live or die, and if she did survive, the outlook wasn’t good. She had suffered a ‘Basilar Artery Thrombosis’ causing a spell in ITU and a further spell on the wards. 10 Days after discharge she was back in hospital with suspected meningitis. 3 ½ years later, Christmas 2013, she had amazed all the consultants, one calling her a ‘Miracle’ she had been discharged from most them (four different consultants) she then contracted tonsillitis. Christmas was spent back in Sheffield Children’s Hospital having suffered a rare reaction to the infection, resulting in Encephalitis (Inflammation of the brain) which manifested in total paralysis of the RH side of her body and severe damage to the LH side of her brain and the part that controls speech. Since then numerous different tests & treatments. Her formal diagnosis is ‘Auto-immune limbic encephalitis, she has severely raised levels of antibodies in her ‘Voltage-gated potassium channels’. If she gets an infection there is a chance that her antibodies will ‘fight’ her brain after fighting whatever infection she has. Several different treatments, both as out & inpatient at Sheffield along with a number of operations but, so far, no effect. To top it off she has also been diagnosed with epilepsy and is on medication to try and control her seizures. Unfortunately, as a growing child this is a constantly changing picture and the seizures remain frequent. She has a large number of regular appointments, from physio & occupational therapy; speech & language therapy; neuropsychologists; neurology & ophthalmology testing, reviews & consultancy; blood testing; epilepsy reviews; and the regional brain injuries coordinator, along with school and home life. She has now been referred to the Children’s hospitals in London. The risk remains that if she gets a minor infection it could have very serious consequences for her.

    Updates

    1

    • Rusty Screws1 year ago
      Rusty Screws

      Rusty Screws

      1 year ago

      35 staff, friends and family now signed up...thank you all...it's going to be an amazing experience for this wonderful cause

      Share this update to help us raise more

    2 years ago

    Rusty Screws started crowdfunding

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    Page last updated on: 9/29/2017 7:21 AM

    Supporters

    83

    • Phil Bailey

      Phil Bailey

      Sep 29, 2017

      Well done everyone for completing the wild warrior-a great day for a great cause

      £10.00

    • deborah baggaley

      deborah baggaley

      Sep 27, 2017

      well done to everyone who to part on Saturday.

      £10.00

    • Andrea Poulter-Doyle

      Andrea Poulter-Doyle

      Sep 25, 2017

      Fantastic job Ranby boys and girls and lots of love to the Blinstone family from me and my mum xx

      £75.00

    • Paul Deacon

      Paul Deacon

      Sep 25, 2017

      Well done everyone

      £30.00

    • Anonymous

      Anonymous

      Sep 24, 2017

      Well done Screws😜

      £20.00

    • Shelshauna Kirkpatrick-Yallop

      Shelshauna Kirkpatrick-Yallop

      Sep 24, 2017

      Well done not so rusty screws.

    • John Thorlby-Coy

      John Thorlby-Coy

      Sep 24, 2017

      Really proud of you all working as a team to complete the course and for a very well worth cause. John + 1

      £50.00

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    About Crowdfunding
    About the fundraiser
    Rusty Screws

    Rusty Screws

    Ranby, United Kingdom

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