24%
£36,029raised of £150,000 target by 598 supporters

Weʼre raising £150,000 to fund targeted therapy drug Pertuzumab (Perjeta) which has been proven to be effective in treating my type of secondary breast cancer.

Location
Mumbles, Swansea, United Kingdom
Time left
79 days to go

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Story

After originally being diagnosed with breast cancer in 2007 at the age of 37, we received the news at the end of September that it had returned in my liver. Secondary breast cancer is not curable, however it is treatable and although we have been devastated by this news and its impact on our family, we have been encouraged by the speed in which the NHS has responded to my situation. As we speak I have already four cycles in to my chemotherapy regime.

I was advised by my oncologist that alongside a combination of Herceptin and chemotherapy a new drug Pertuzumab would be best the best option for me. However Pertuzumab is not available on the NHS in Wales, although it is available routinely in England on the NHS.

Having applied to the Health Board’s Individual Patient Funding Request Panel (IPFR), and been turned down, we are looking to appeal the decision, and have also written to our AM Rebecca Evans and MP Byron Davies for support with this.

We have decided that we do not have the luxury of time to wait for any decision on this drug, so in the short term we have using what savings we have to fund at least the first three treatments. The initial loading dose costs £5,000 and every subsequent treatment will cost £3,000. I had my first infusion of Pertuzumab on Friday 21 October.

So in the short-term whilst still reeling from the diagnosis and the implications this has for my family, we have decided to start fundraising. I have been loving and living life for the past 9 years and I intend to keep doing so, we plan on organising #100 fun things to do with the help of our wonderful friends.

We realise that Pertuzumab does not offer a miracle cure, however it gives me hope that I could have months or years of extra time with my husband and son.

If you feel you could help, either by donating, or with fundraising ideas, we would be eternally grateful.

Love

Sam, Phil and Ioan
xxxx

www.facebook.com/samcansparkle
www.twitter.com/samcansparkle

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Updates

2

  • Samantha Ward-Jones

    Samantha Ward-Jones

    12 days ago

    Samantha Ward-Jones

    In only one month we have raised an incredible amount of money, far more than we could ever have imagined. I have started receiving Pertuzumab and already we are seeing encouraging results, with my blood tests showing weekly improvements in my liver function. This money alone will mean I can continue to receive Pertuzumab until June next year, which is amazing and gives us the breathing space we need to explore our options going forward. Thank you so much! xxx

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  • Samantha Ward-Jones

    Samantha Ward-Jones

    a month ago

    Samantha Ward-Jones

    Phil and I are utterly overwhelmed with everyone's generosity and can't thank you enough,. We are so blessed to know so many wobderf people, it's truly humbling! Thank you xxx

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a month ago

Samantha Ward-Jones started crowdfunding

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Supporters

598

  • Sian Williams

    Sian Williams

    Dec 4, 2016

    Wish i could give more. Big hug xx

    £30.00

  • Louis & Maggie Fligelstone

    Louis & Maggie Fligelstone

    Dec 4, 2016

    Hi SamGood luck with treatment & appeal for funding. Our family wish you well & hope The Oyster Boys Live at the Rock and Fountain on 10th Dec 8pm raises even more. Wales should be same as England!!

    £50.00

  • Rhian Broad

    Rhian Broad

    Dec 3, 2016

    Sorry its late Bec. Well done on a fantastic effort! x

    £10.00

Samantha Ward-Jones

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About the fundraiser
Samantha Ward-Jones

Samantha Ward-Jones

Mumbles, Swansea, United Kingdom

My name is Sam Ward-Jones and I live in Mumbles with my husband Phil, our 13 year old son Ioan and our two Labradors India and Willow.

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