I've raised £4000 to raise funds for Specialist Equipment and Wish Upon a Dream

Organised by Sally Barton
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Isle Of Man ·Disability support

Story

The Mountains of TSC and Everest.

Two lovely ladies. Two mountains to climb. One for a lifetime. One remembered for a lifetime.

Everest Base Camp has an altitude of 5,364 meters, and takes between 12-14 days, upto 8 hours per day, to trek up there, and between 4-5 days to trek back down to Lukla.

My Husband John and I will be taking on this epic challenge in October 2024 with the aim of raising funds for Wish upon a Dream, a charity close to our hearts, and for a specialist equipment for my granddaughter Sophie.

Sophie, now 3 years old, was diagnosed with a condition called Tuberous Sclerosis Complex (TSC) at 4 months old. TSC is a rare genetic condition that causes mainly non-cancerous tumours to grow in different parts of the body. These tumours most often affect the Brain, skin, kidneys, heart, lungs, and eyes. Sophie currently has tumours in her brain, heart, kidneys, and on her skin. The tumours in her brain cause her to have medication resistant epilepsy, which means that although she takes multiple anti-epileptic drugs per day, she still continues to have several seizures per day. Sophie will need specialist care for most of her life but as each person with TSC is affected differently by the tumours their body has, we won’t know how much care that will be. We have no idea what Sophie’s life will be like and take each day as it comes.

The charity, Wish upon a Dream, is an independent charity, ran by an incredible lady called Lesley, grants wishes to very sick children here on the Isle of Man. Sophie was gifted some amazing sensory equipment from Wish Upon a Dream, that she LOVES and that has helped her development tremendously. Without the sponsorship, annual pledging, and donations received by Wish Upon a Dream, the wishes would not be possible.

All money raised on this page (and cash donations) will be donated to Wish upon a Dream and put towards a specialist equipment for Sophie.

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About fundraiser

Sally Barton
Organiser

Donation summary

Total
£3,465.00