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Simon Batchelor raised £480 from 19 supporters
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Closed 20/11/2016
Iʼve raised £480 to Help fund an epilepsy awareness video, which will in turn generate research funding for Epikepsy Research Uk.
- Green Hammerton, United Kingdom
- Funded on Sunday, 20th November 2016
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Story
I am ultimately trying to raise research funding for Epilepsy Research UK.
I have written a soundtrack that covers how epilepsy affects individuals and families daily, without us even realising it. I want to produce a video that will depict the song to visually portray how this might manifest itself, being it going for a walk, or simply trying to eat your breakfast.
The reason that I'm doing this work is because my 11 year old son had his first seizure at just 6 weeks old. His seizures are not controlled by medication or medical implants such as his VNS implant. I want to help fund the next generation of epilepsy research, which needs hard cash.
The reason I thinks it's important to spend this amount of money on an awareness video is that people simply don't realise how epilepsy affects people's lives. We need to be more epilepsy aware, even I believed all the misconceptions about epilepsy.
In donating to this cause you will be helping not only me, but everyone affected by epilepsy. There is still stigma around today, where people are uncomfortable talking about it. I want that to change.
In talking about it, we can learn to understand epilepsy, and more importantly, those who have it.
If we receive donations over and above what we need to produce the video, this will be donated to Epilepsy Research UK
Many thanks
Simon
Updates
3
- 8 years ago
Simon Batchelor
8 years agoI would like to thank everyone who has helped me raise these funds to produce an epilepsy awareness video for 2017. This will encourage people to donate for epilepsy research as well. We are als going to promote awareness by starting a challenge, similar to ice bucket etc Many thanks Simon
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- 8 years ago
Simon Batchelor
8 years agoI am so very grateful to all those who have supported us by donating. These donations will work to create Epilepsy Awareness, and help us raise much more desperately needed research funding for Epilepsy Research UK Many Thanks Simon
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- 8 years ago
Simon Batchelor
8 years agoWe have now received 20% of the funds required which is excellent. Please share this post do others can donate as well. We are getting good feedback about the song "No Control", from those in the epilepsy community. Thank you once again for your support
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Simon Batchelor started crowdfunding
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Supporters
19
Scott Walker
Oct 11, 2016
£20.00
Sue Mutton
Sep 16, 2016
Well done for raising so much
£20.00
Gail Barry
Sep 15, 2016
Hi, great to see someone acting positively for epilepsy
£20.00
Julia Latreille-Favre
Sep 14, 2016
From an ex-pat across the pond, thank you for doing this. This world needs more awareness and greater understanding of Epilepsy. Cheers, Julia
£30.00
Anonymous
Sep 12, 2016
Good luck Simon, hope you reach your target. Polkey
£20.00
Anonymous
Sep 8, 2016
£5.00
Steve & Norma Speirs
Sep 7, 2016
£20.00
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