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Julian Gilhespie raised £168,974.7 from 873 supporters.

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Closed 25/02/2017

112%
£168,974raised of £150,000 target by 873 supporters

    Weʼve raised £168,974 to help fund Sam's treatment

    Location
    London, United Kingdom
    Time left
    Funded on Saturday, 25th February 2017

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    The page owner is responsible for the distribution of funds raised.

    Story

    This is Sam. He is four years old. He and his big sister Lily are the lights of our lives. Just before Christmas doctors found a tumour on Sam’s brain. The tumour was removed during an eight-hour operation at Great Ormond Street Hospital and Sam has made an amazing recovery, even after a haemorrhage that left one side of his body with little strength and movement. We were devastated to discover that the tumour contained cancerous cells and Sam now needs radiotherapy to stop the cancer spreading. Conventional radiotherapy on such a young brain that is still developing will have serious long-term side effects including life-changing cognitive damage and risk of secondary tumours.

    We want to try and raise enough money for Sam to have Proton Beam Therapy, a kind of targeted radiotherapy that spares more of the healthy brain tissue so has fewer side effects and is better suited to young children. It is not available in this country. The NHS currently sends some people abroad for Proton Beam Therapy but they won’t fund treatment for Sam’s type of tumour.

    Doctors at Heidelberg University hospital in Germany, a very well respected medical research centre, have agreed to treat Sam. He will be receiving Proton radiotherapy five days a week for six-eight weeks under general anaesthetic. Your donations would be used to fund the treatment itself, our travel and accommodation.

    Sam’s tumour was diagnosed as a Diffuse Midline Glioma (or an astrocytoma grade 4) with a specific genetic mutation H3 K27M. We’re not going to talk about “fighting” cancer, or “battling” the disease, we just want to do the best by our gentle, affectionate son with the very limited choices we have. As his Mum and Dad we want to give him the treatment that will spare more of what makes him Sam, and give him a better chance of living a normal, happy little boy’s life for however long that life might be.

    Thank you from the bottom of our hearts.

    Katie and Julian, Sam’s Mum and Dad

    Updates

    3

    • Julian Gilhespie8 months ago
      Julian Gilhespie

      Julian Gilhespie

      8 months ago
      Update from the Page owner

      Thank you once again to everyone who donated. The generosity of you all has been overwhelming and extremely moving. The messages of support were very important to us. Sam is now in Heidelberg and has started treatment. The doctors are fantastic and somehow, Sam is happy to hop on the bus to hospital every morning. He's having chemotherapy on top of the Proton which will start to take its toll but so far so good and he's piling on the weight due to a new found love of schnitzel. Thank you to everyone who helped get us here. Katie and Jules x

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    • Julian Gilhespie9 months ago
      Julian Gilhespie

      Julian Gilhespie

      9 months ago

      You wonderful, wonderful people! Thank you to everyone who helped us reach our target so quickly - £150,000 in three days (it must be a Just Giving record). We've had donations from family, friends, friends of friends and people we've never even met before. Your messages of support have helped us feel less alone and have shown us how loved Sam is. Thank you

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    • Julian Gilhespie9 months ago
      Julian Gilhespie

      Julian Gilhespie

      9 months ago

      Thank you to everyone who has donated so far. We are incredibly moved by your generosity and the speed at which everyone is giving. K and J xx

      Share this update to help us raise more

    9 months ago

    Julian Gilhespie started crowdfunding

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    Supporters

    873

    • Mary Holliday

      Mary Holliday

      Feb 25, 2017

      My thoughts are with you, Kate and Julian

      £25.00

    • Harry Seekings

      Harry Seekings

      Feb 25, 2017

      You are all in our thoughts. We're rooting for Sam.Harry & Pia Seekings

    • Anonymous

      Anonymous

      Feb 24, 2017

      I hope he gets his treatment soon!!!

      £10.00

    • Kathryn Holliday

      Kathryn Holliday

      Feb 24, 2017

      Sending you lots and lots of love, Kathryn

      £250.00

    • Frederick and Barbara Peacock

      Frederick and Barbara Peacock

      Feb 23, 2017

      Much love and good wishes

      £100.00

    • Franko Covington

      Franko Covington

      Feb 23, 2017

      £10.00

    • David Savage

      David Savage

      Feb 23, 2017

      All the very best to Sam and his family at this very trying time.

      £100.00

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    About Crowdfunding
    About the fundraiser
    Julian Gilhespie

    Julian Gilhespie

    [object Object]

    London, United Kingdom

    Katie Salter and Julian Gilhespie, Sam's Mum and Dad

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