Our son Tommy was diagnosed with duchenne muscular dystrophy 2 days before his third birthday in November 2015.
DMD is a muscle wasting disease that will confine him permanently to a wheelchair sometime over the next 3-6 years gradually attacking every muscle in his body till he can no longer move independently.
There is no known cure for DMD and life expectancy is late twenties .
We have had to fight for everything since Tommys diagnosis and were treated terribly by the people at disability living allowance who forced us to appeal several times before accepting the views of experts.
We are currently fighting the decision not to move us from a flat at the top of thirty stairs even though in a few weeks our son will have his first wheelchair and that is how this page was born as the many of the kind people who signed and supported our petition asked if they could donate.
So here it is Tommys just giving page to partially fund a power chair when required.
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