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Irene Allen raised £1,965 from 50 supporters

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Closed 31/12/2017

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£1,965raised of £5,000 target by 50 supporters

    Weʼve raised £1,965 to get 2-year old Vinnie Jones an electric wheelchair and ongoing physio. Please help me to raise funds for this little boy in our community.

    South West London
    Funded on Sunday, 31st December 2017

    What is crowdfunding?

    Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.

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    Story

    Imagine being born with a perfect brain, seeing the world as any able-bodied person, but being unable to move. Such is the case with people born with SMA - a rare genetic disorder that leaves those affected completely physically dependent on their carers.

    Vinnie was born with type 1 SMA (spinal muscular atrophy), which is the most severe form, meaning he has widespread muscle weakness. Vinnie is tube-fed as he is too weak to swallow. He has difficulty breathing and needs the help of a ventilator for 16 hours a day to ensure he gets enough oxygen. His muscles are so weak that he struggles to move (although this little fighter tries his hardest to do so.) Vinnie cannot lift his head or limbs properly, and he cannot speak (as hard as he seems to be trying). His amazing mother Kelly nurses him 24-7. Over and above the usual dressing, bathing and nappy changing, she suctions secretions from his mouth, delivers his therapy exercises, carries him around, entertains him, fund-raises for him, keeps him company and does whatever she can to ensure she gives him the best life experience possible. Besides all this Kelly still finds the time to share her love with her little girl Kaydee and campaign for the SMA cause.

    Vinnie now needs an electric wheelchair and sufficient funds to pay for ongoing physiotherapy that will enable him to achieve greater independence, to sit upright, and see the world from a different perspective. The electric wheelchair Vinnie needs costs in excess of £16000. His family are already doing all they can to raise the money needed for the chair, and all the treatement he needs to get stronger, and I'd like to help!

    Vinnie has defied the odds and constantly surprises those around him. He is successfully weaning off his ventilator and continues to achieve new strength and movement goals like moving his legs better during hydrotherapy and gaining better head control in sitting. It was a privilege to meet Vinnie and witness his amazing determination.

    I'm going to cycle 400 km across Cuba to help raise funds for Vinnie. I'm doing this because my uncle Jody spent 40 years in a wheelchair as a quadriplegic and my dear friend Renett had SMA and eventually died of breast cancer. They spent a lifetime trying to find the money to fund their independence. I know how hard it is. I have a choice to move, Vinnie does not. So I'm going to move for Vinnie and need your help to support this amazing little boy!

    Updates

    3

    • Irene Allen1 year ago
      Irene Allen

      Irene Allen

      1 year ago

      In 17 days I fly off to Cuba for Vinnie! It's been a bit unsettling in light of recent hurricane Irma but the trip is all set to go ahead. Over the last few months I've been lucky enough to train in a wonderful variety of places from the Surrey Hills, to the Cradle of Humankind in South Africa, the sandy tracks in Maun, Botswana (on a fat-bike with Ellie's nearby!) and up & down the Downs Link connecting Guildford and Shoreham-on-Sea. Feeling fitter and ready for the final push! Thank you for your ongoing interest and support x

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    • Irene Allen1 year ago
      Irene Allen

      Irene Allen

      1 year ago

      Vinnie's amazing team of supporters and fundraisers have now raised enough to secure his electric wheelchair. Well done everyone! All funds donated on this page will now go towards Vinnie's ongoing physiotherapy. Vinnie is making incredible progress steadily gaining more muscle strength and control but he can't do this without the constant input from his rehab team. Keep it up Vinnie! You're doing so well!

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    • Irene Allen1 year ago
      Irene Allen

      Irene Allen

      1 year ago

      Thank you for all the donations and amazing support so far everyone! We've got a way to go but time is on our side. Training is going well as I prepare for 7 days in the saddle! Gel saddle cover coming in handy already! Pls keep sharing for Vinnie. Irene x

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    1 year ago

    Irene Allen started crowdfunding

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    Page last updated on: 12/14/2017 10:21 AM

    Supporters

    50

    • Emma Kelly

      Emma Kelly

      Dec 14, 2017

      £50.00

    • Cecilia F.Toth Klincsek

      Cecilia F.Toth Klincsek

      Nov 9, 2017

      Dear Irene, So Sorry So Late!!! Well Done On The Cycling In Cuba, Very Proud Of You!!! Lots Of Love Cecilia & Andris

      £10.00

    • Erik Van Dyke

      Erik Van Dyke

      Nov 2, 2017

      Well done on your efforts for a brilliant cause. from Darina Healy Van Dyke and Erik

      £20.00

    • Charlie Cox

      Charlie Cox

      Oct 25, 2017

      Fantastic week and lovely to meet you Irene, keep it up! xxx

      £10.00

    • Hjortur Olafsson

      Hjortur Olafsson

      Oct 20, 2017

      Well done and good luck getting to your goal.

      £50.00

    • Anri Visser

      Anri Visser

      Oct 18, 2017

      Such an amazing job I! Well done!!! What a privilege! X

      £50.00

    • david stephen

      david stephen

      Oct 16, 2017

      £50.00

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    About Crowdfunding
    About the fundraiser
    Irene Allen

    Irene Allen

    South West London

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