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Samantha Smith raised £19,162 from 181 supporters.

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Closed 26/08/2016

38%
£19,162raised of £50,000 target by 181 supporters

    Weʼve raised £19,162 to fund life changing surgery and or therapy for Zach. SDR would allow Zach to walk on his own, improve function, mobility, reduce spasticity

    Location
    Offord Darcy, Offord D'Arcy, United Kingdom
    Time left
    Funded on Friday, 26th August 2016

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    Story

    Thank you for taking the time to read our story.

    Zach was born in October 2010 with a condition called Exomphalos. Which is where the abdominal muscles do not close fully pregnancy. Zach wasn't reaching his milestones so we put it down to him having very poor core strength. In July 2012 we were given the devestating news that Zach had Quadraplegic Cerebral Palsy. We were told that he would never be able to sit, crawl, stand, walk or talk and his fine motor skills would be affected. Along with this condition Zach also only has one kidney as there was severe damage caused by reflux to the other one. He also has a 22q13.2 chromosome deletion, which geneticists are still investigating and developmental delay.
    In the same year Zach had closure surgery on his stomach to put his organs back into his body.
    Zach has lots of equipment that he uses in school and at home. Special seating system, K-Walker, Buddy Roamer, corner seat, standing frame and uses a wheelchair daily. He also has physio daily And uses a corner seat whilst wearing gaiters which help stretch his hamstrings.
    The funds raised would pay for the Selective Dorsal Rhizotomy procedure along with intense aftercare. SDR is a procedure designed for Cerebral Palsy sufferers, a neurological disorder that affects the relationship between the brain and the nervous system. The exact cause of Cerebral Palsy is not known but it has been linked to bleeding on the brain and lack of oxygen reaching the brain.
    SDR is a neurological procedure that reduces spasticity permanently and improves motor activity. During the operation each nerve route is divided into 3 to 5 nerve rootlets, the surgeon then stimulates each rootlet to identify the dorsal nerve rootlets that cause spasticity.
    After the operation there is intensive physiotherapy which lasts for up to three years.

    Previous funds raised have funded private physio sessions and equipment.
    New monies raised will fund the operation & or therapy for Zach.

    Updates

    2

    • Samantha Smitha year ago
      Samantha Smith

      Samantha Smith

      a year ago

      Massive thanks to everyone who has donated. Sorry I can't thank you all individually xx

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    • Samantha Smitha year ago
      Samantha Smith

      Samantha Smith

      a year ago

      Thank you to everyone who has donated already. Yesterday I took part in Good Morning Britains Toughmums. I was one of 100 inspirational mums who were chosen from 1000 applicants. I have uploaded pictures onto Zachery's Aim Facebook page. Please feel free to like and share.

      Share this update to help us raise more

    a year ago

    Samantha Smith started crowdfunding

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    Supporters

    181

    • Andy Ellams

      Andy Ellams

      Aug 9, 2016

      Well done!

      £5.00

    • Anonymous

      Anonymous

      Aug 8, 2016

      Well done Iain! A great achievement.

      £50.00

    • Bruce Clark

      Bruce Clark

      Aug 8, 2016

      £50.00

    • Mark West

      Mark West

      Aug 8, 2016

      Well done on the 3 Peaks Challenge.

      £20.00

    • Luke Catchpole

      Luke Catchpole

      Aug 8, 2016

      £10.00

    • Anonymous

      Anonymous

      Aug 8, 2016

      £25.00

    • Katie Waggitt

      Katie Waggitt

      Aug 8, 2016

      All the best, Katie Waggitt (katie Barry)

      £10.00

    About the fundraiser
    Samantha Smith

    Samantha Smith

    Offord Darcy, Offord D'Arcy, United Kingdom

    We have been fundraising for the last three years. In 2013 we took part in a 100 mile bike ride, raising £1500, 2014 a Toughmudder course, raising £1000 and 2015 was my biggest challenge, another Toughmudder, a triathlon with two family friends and a 10k run, raising £2500.

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