I've raised £300 to to raise awareness of the rare condition 'RETTS SYNDROME' & get a very special little girl on her first break away from her daily battles

As a lot of you all know I am a carer for a special little 7 year old girl. She goes by the name of 'Nina'.
'Nina was born with RETTS syndrome- a disorder that displays itself in early intfancy,seen almost always in girls, the cause is not known. RETTS can interfere with the body's movements and make nina very ill, one day nina might be able to speak certain words or walk, breathe comftably ect but the day later she could go through a regression Stage and lose all skills she had known.
Unfortunatley RETTS will also shortens Ninas life to the normal expectancy. (there's so much more to RETTS that words could never peice together).
Nina also has gutt motility developmental delay,epilepsy and Autism spectrum disorder which adds to her struggles.
The first day I met Nina my heart broken into peices as I watched her in so much pain, her mum had to watch Nina slip through her fingers three times last year, but she survived and she has done nothing but knock every obstacle out of her way with determination but it hasn't been easy.
The day I met nina she inspired me, to become better, to appreicate life that bit more, to want to give more and to not take for granted the very small things the majority of us are born with. The things money cannot buy!
I felt she was a gift sent to me from above, and the bond we have is unbreakable, she is my bestfriend and I could not imagine my life without her.
Nina has never had a holiday and when she did get to have a small break away to Ribbyhall she took a turn for the worste. I want to get her back or get her somewhere else. Just somewhere she can enjoy.
I watch Nina face her fears every day. So i am going to face mine, it might be small to you but to me it is a huge fear of hights, im going to get fit and climb mount snowdon to raise awareness for RETTS, and to show nina how much she means to me and the main one to hopefully get her on a small peaceful break away from her daily struggles. Please give if u can