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Closed 06/11/2017

0%
£630
raised of £300 target by 21 supporters

    Weʼve raised £630 to to raise awareness of the rare condition 'RETTS SYNDROME' & get a very special little girl on her first break away from her daily battles

    Liverpool, United Kingdom
    Funded on Monday, 6th November 2017

    Don't have time to donate right now?

    Story

    As a lot of you all know I am a carer for a special little 7 year old girl. She goes by the name of 'Nina'.

    'Nina was born with RETTS syndrome- a disorder that displays itself in early intfancy,seen almost always in girls, the cause is not known. RETTS can interfere with the body's movements and make nina very ill, one day nina might be able to speak certain words or walk, breathe comftably ect but the day later she could go through a regression Stage and lose all skills she had known.
    Unfortunatley RETTS will also shortens Ninas life to the normal expectancy. (there's so much more to RETTS that words could never peice together).
    Nina also has gutt motility developmental delay,epilepsy and Autism spectrum disorder which adds to her struggles.

    The first day I met Nina my heart broken into peices as I watched her in so much pain, her mum had to watch Nina slip through her fingers three times last year, but she survived and she has done nothing but knock every obstacle out of her way with determination but it hasn't been easy.

    The day I met nina she inspired me, to become better, to appreicate life that bit more, to want to give more and to not take for granted the very small things the majority of us are born with. The things money cannot buy!

    I felt she was a gift sent to me from above, and the bond we have is unbreakable, she is my bestfriend and I could not imagine my life without her.

    Nina has never had a holiday and when she did get to have a small break away to Ribbyhall she took a turn for the worste. I want to get her back or get her somewhere else. Just somewhere she can enjoy.

    I watch Nina face her fears every day. So i am going to face mine, it might be small to you but to me it is a huge fear of hights, im going to get fit and climb mount snowdon to raise awareness for RETTS, and to show nina how much she means to me and the main one to hopefully get her on a small peaceful break away from her daily struggles. Please give if u can

    Updates

    1

    • Abbi russell7 years ago
      Abbi russell

      Abbi russell

      7 years ago
      Update from the Page owner

      Share this update to help us raise more

    7 years ago

    Abbi russell started crowdfunding

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    Page last updated on: 11/7/2017 11.43

    Supporters

    21

    • Anonymous

      Anonymous

      Nov 4, 2017

      Beautiful words Abby. Nina really is so lucky to have you as her friend and carer. You will overcome your fears and enjoy every moment. Well done in advance .I know you can do it .love you chick.x

    • amy randall

      amy randall

      Nov 1, 2017

      Good luck aunty abab! Lots of love Harry xxx

      £10.00

    • Lou Bretherton

      Lou Bretherton

      Nov 1, 2017

      Good Luck abbi. so proud of you. my mum and nina are so lucky to have such a kind and considerate carer in there life, you've got a heart made of gold. Good Luck xxx

      £10.00

    • Liam spoforth cash donation

      Liam spoforth cash donation

      Nov 1, 2017

      Liam spoforth cash donation

      £10.00

    • Gareth, Ian and all at Key Care & Support

      Gareth, Ian and all at Key Care & Support

      Nov 1, 2017

      Good Luck Abbi, such a great cause, more awareness needs to be raised and you're going a long way to doing this.

      £100.00

    • Anonymous

      Anonymous

      Oct 31, 2017

      £10.00

    • Lynn Wakerley-Seddon

      Lynn Wakerley-Seddon

      Oct 31, 2017

      Good luck Abbi and I hope Nina gets a holiday she deserves xxx

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    Abbi russell

    Abbi russell

    Liverpool, United Kingdom

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