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Abbi russell raised £630 from 21 supporters
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Closed 06/11/2017
Weʼve raised £630 to to raise awareness of the rare condition 'RETTS SYNDROME' & get a very special little girl on her first break away from her daily battles
- Liverpool, United Kingdom
- Funded on Monday, 6th November 2017
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Story
As a lot of you all know I am a carer for a special little 7 year old girl. She goes by the name of 'Nina'.
'Nina was born with RETTS syndrome- a disorder that displays itself in early intfancy,seen almost always in girls, the cause is not known. RETTS can interfere with the body's movements and make nina very ill, one day nina might be able to speak certain words or walk, breathe comftably ect but the day later she could go through a regression Stage and lose all skills she had known.
Unfortunatley RETTS will also shortens Ninas life to the normal expectancy. (there's so much more to RETTS that words could never peice together).
Nina also has gutt motility developmental delay,epilepsy and Autism spectrum disorder which adds to her struggles.
The first day I met Nina my heart broken into peices as I watched her in so much pain, her mum had to watch Nina slip through her fingers three times last year, but she survived and she has done nothing but knock every obstacle out of her way with determination but it hasn't been easy.
The day I met nina she inspired me, to become better, to appreicate life that bit more, to want to give more and to not take for granted the very small things the majority of us are born with. The things money cannot buy!
I felt she was a gift sent to me from above, and the bond we have is unbreakable, she is my bestfriend and I could not imagine my life without her.
Nina has never had a holiday and when she did get to have a small break away to Ribbyhall she took a turn for the worste. I want to get her back or get her somewhere else. Just somewhere she can enjoy.
I watch Nina face her fears every day. So i am going to face mine, it might be small to you but to me it is a huge fear of hights, im going to get fit and climb mount snowdon to raise awareness for RETTS, and to show nina how much she means to me and the main one to hopefully get her on a small peaceful break away from her daily struggles. Please give if u can
Updates
1
- 7 years ago
Abbi russell
7 years agoShare this update to help us raise more
Abbi russell started crowdfunding
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Supporters
21
Anonymous
Nov 4, 2017
Beautiful words Abby. Nina really is so lucky to have you as her friend and carer. You will overcome your fears and enjoy every moment. Well done in advance .I know you can do it .love you chick.x
amy randall
Nov 1, 2017
Good luck aunty abab! Lots of love Harry xxx
£10.00
Lou Bretherton
Nov 1, 2017
Good Luck abbi. so proud of you. my mum and nina are so lucky to have such a kind and considerate carer in there life, you've got a heart made of gold. Good Luck xxx
£10.00
Liam spoforth cash donation
Nov 1, 2017
Liam spoforth cash donation
£10.00
Gareth, Ian and all at Key Care & Support
Nov 1, 2017
Good Luck Abbi, such a great cause, more awareness needs to be raised and you're going a long way to doing this.
£100.00
Anonymous
Oct 31, 2017
£10.00
Lynn Wakerley-Seddon
Oct 31, 2017
Good luck Abbi and I hope Nina gets a holiday she deserves xxx
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