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Adam Tate raised £220 from 5 supporters

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Closed 02/08/2019

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£220raised of £1,500 target by 5 supporters

    Weʼve raised £220 to help fund Fahr Beyond charity to setup a support network for patients diagnosed with Fahr's Disease/Fahr's Syndrome

    United Kingdom, International
    Funded on Friday, 2nd August 2019

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    Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered nonprofit.

    The page owner is responsible for the distribution of funds raised.

    Story

    Adam's Story

    I was misdiagnosed with Fahr's disease in 2014 after a zip line accident. I was told at the time by a General Practitioner that I had a unique CT scan trace indicating that I had Fahr's, and as such I would loose movement within 2 years and likely be dead within 8 years. At the time when the GP told my family and I, we were left isolated and unaware of what to do and who to find support from.

    I underwent very extensive testing at John Radcliffe Hospital in Oxford, where it was established in 2015 that I do have some symptoms of Fahr's and significant bilateral calcifications of the Basal Ganglia involving the Frontal Cortex.However, due to my young age there is not a neurologist in the UK who would commit to giving me a definite diagnosis and that it is unlikely to impact in the manner the GP had described. The relief after further testing and consultations with neurologists was immense. This sparked my interest in the disease and the need for a support network, and better information for diagnosing Fahr’s.

    Since then I have been back for further testing when concerns have arisen about my neurological well being.

    Fahr Beyond therefore was born and there has been a long journey in creating an organisation that is placed to:

    1. Support people with Fahr's

    2. Support families of those who have Fahr's

    3. Support Medical Professionals to recognise and accurately diagnose Fahr's

    4. Support the world's first Medical Doctorate in Fahr's

    Fahr Beyond has taken an even more significant role as Adam has reached out to other organisations around the world, participated in the 100,000 Genome project ran by the NHS, and Fahr Beyond taking up the baton as the only charity in the world to exclusivity work to support people with Fahr's. Fahr Beyond Website

    Updates

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    Adam Tate

    Updates appear here

      7 months ago

      Adam Tate started crowdfunding

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      Page last updated on: 5/3/2019 11.19

      Supporters

      5

      • Anonymous

        Anonymous

        May 3, 2019

        £90.00

      • Sarah Dickinson

        Sarah Dickinson

        May 3, 2019

        Good luck reaching your target 😊

        £10.00

      • Charlie

        Charlie

        Apr 6, 2019

        Nice work Adam, keep it up!

      • Paul Eddy

        Paul Eddy

        Apr 5, 2019

        Keep up the good work.

        £50.00

      • David Stinson

        David Stinson

        Apr 4, 2019

        The David Stinson Theatre School is proud to be supporting Fahr Beyond. All of our ticket sales from all of our shows goes straight to this wonderful charity! Here’s a small personal contribution. 🥰

        £20.00

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      About Crowdfunding
      About the fundraiser
      Adam Tate

      Adam Tate

      United Kingdom, International

      I am Adam, the founder of Fahr Beyond. It was founded following my experience of feeling left lonely and isolated with a rare disease the doctors knew little about and had nowhere to sign post my family and I to.

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