A little bit of Why What & Who for..

Why…
On the 2nd of June we had premature twins by emergency C Section at the Royal Lancaster Infirmary, Twin 1 Isabella fed straight away and well, but when we came to feed Twin 2 Adam, he very quickly turned blue and started choking.

This was diagnosed by the neonatal paediatrician as a TOF (Tracheo-Oesophageal Fistula) and Adam was taken from us and rushed down the M6 to St Mary’s specialist Neonatal unit in Manchester.

The team at Manchester further diagnosed his problem as a TOF/OA (Tracheo-Oesophageal Fistula, Oesophageal Atresia). To put this simply his stomach was attached to his wind pipe & his throat was a dead end. This meant as he was feeding it would just fill the dead end and overflow into his windpipe & lungs.

The surgical team in Manchester worked miracles and managed to reconnect them together (just). They had to paralyse him for a further 48 hours to prevent him moving and tearing the repair. However it has torn slightly and he's under further observations and interventions that are keeping him alive while his body try's to heal the tear. Meaning all his breathing and feeding is being done by machines / specialist nursing staff.

Once the leak has self repaired they will be able to start feeding him properly and build his strength up enough to come home. He will have life long problems but with such a strong family & friends around he will always be loved.

On top of this once Adam had returned home it was discovered he is profoundly deaf meaning hearing aids & cochlear implants can't be used and his only mode of communication is through sign language.

Who for…

This crowdfunding is to raise funds to help make his life easier as it is becoming more and more difficult to get local authority help we rely more and more on charities help. For example his adapted chair was over £3000. The sign language course for each of the parents will come to approx £3-4000 each by completion