Weʼre raising £2,500 to help our close family friend, little Vincent, with school fees & to integrate with other children. Every penny helps - Thank you all ❤️💜💚
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Meet little Vincent (Vincukas in Lithuanian). He is seven, he was born and grows with a severe disability.
He attends a school that would accept him as he is and help him study as any other child would. Unfortunately, the school is private. We would like to help with these fees so his parents, Indrė and Mantas, could concentrate on his care.
Vincent is an intelligent boy despite all the multiple disabilities he has (including poor growth, severely deformed spine, incomplete nasal congestion (congenital nasal dysplasia, narrowing of the upper respiratory tract), poor vision, weak hearing, frail bone, impaired pelvic performance, and motor skills and abilities. He is very enthusiastic, cheerful, agile (as far as he goes), communicative, tends to be interested in innovation. Vincent is very interested in "science", dinosaurs, dragons, cars and oceans. He also likes to read, chats a lot, swims and dreams to travel.
Vincent was born with a very rare genetic disease x-recessive Chondrodysplasia punctata / (CDPX1). Due to the bone deformity caused by this disease, it is difficult for him to move (myelopathy, syringomyelitis, mixed paresis of both legs), he is catheterised several times a day (neurogenic urinary bladder), and he has been living with titanium spinal implants for 4 years (chest and spinal deformities). During these 4 years, Vincent had several major surgeries including leg surgery, 6 spinal surgery, numerous clinical trials with narcosis and long rehab times. Seventh serious spinal backbone surgery is coming soon.
Due to these impairments, Vincent needs nursing and care products, nappies, catheters, disinfectants, dressings, spec. bed linen, special swimwear, unformed bone nose hinges - individually adapted goggles, hearing aids and their care products, movement techniques, medicines and special individual footwear, individual breast and spinal inserts, regular travel to health facilities and rehab, treatment and health care services.
Vincent is very happy to start attending a school where he learns, communicates with other children and feels happy. It's really great to attend a school that is ready to help, ready to cope with physical difficulties, adapt to the environment, sincerely accept Vincent into a group of healthy children, encourage creativity to respect individuality and maintains an excellent psychological balance.
The disease is rare, difficult, it is difficult to predict it and cure it. It would be so nice to give Vincent not only the necessary medical care and help but to help him grow happy between good and happy people, let him dream and see how his dreams come true. Finally, give him the opportunity to choose, to be interested in different things and to get to know the world.
Charity and Support Foundation Natus vincere
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Agne Zindziute started crowdfunding