My name is Aida. I have a genetic condition called CDKL5 which I was born with. This has left me with severe Global Development Delay, Cortical Visual Impairment, daily seizures that often last as long as 15 minutes, no speech, and very limited mobility.

My Mummy & Daddy are currently converting the house so that I can have the facilities I need to ensure I am well looked after into the future. The conversion is to allow a wet room and bedroom to be situated downstairs.

We did have a problem funding a specialist shower bench but fortunately we have now achieved this through this crowd funding campaign. As this target has been met, any additional funds will be spent on additional sensory equipment and mobility equipment for my adventure's!

Although I am unable to speak, I love to move around the house and garden along with taking my dog Jenson on walks when out and about.

I pledge to walk at least 0.5 mile per day in return for your generosity and I promise that my Mummy and Daddy will regularly upload photos of me walking, during my daily therapeutic exercise.

I promise that every penny that you give will go towards the purchase of the shower bench and additional equipment.

Thank you!

CDKL5: http://www.curecdkl5.org/what-is-cdkl5/what-is-cdkl5-2/what-is-cdkl5-disorder/

Shower Bench: https://www.astorbannerman.co.uk/product/nivano/