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Mr Jamie Palfrey raised £1,900.45 from 61 supporters

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Closed 06/01/2021

0%
£1,900
raised of £2,500 target by 61 supporters

    Weʼve raised £1,900 to help to further fund specialist sensory and mobility equipment for Aida.

    ST. NEOTS
    Funded on Wednesday, 6th January 2021

    Don't have time to donate right now?

    Story

    My name is Aida. I have a genetic condition called CDKL5 which I was born with. This has left me with severe Global Development Delay, Cortical Visual Impairment, daily seizures that often last as long as 15 minutes, no speech, and very limited mobility.

    My Mummy & Daddy are currently converting the house so that I can have the facilities I need to ensure I am well looked after into the future. The conversion is to allow a wet room and bedroom to be situated downstairs.

    We did have a problem funding a specialist shower bench but fortunately we have now achieved this through this crowd funding campaign. As this target has been met, any additional funds will be spent on additional sensory equipment and mobility equipment for my adventure's!

    Although I am unable to speak, I love to move around the house and garden along with taking my dog Jenson on walks when out and about.

    I pledge to walk at least 0.5 mile per day in return for your generosity and I promise that my Mummy and Daddy will regularly upload photos of me walking, during my daily therapeutic exercise.

    I promise that every penny that you give will go towards the purchase of the shower bench and additional equipment.

    Thank you!

    CDKL5: http://www.curecdkl5.org/what-is-cdkl5/what-is-cdkl5-2/what-is-cdkl5-disorder/

    Shower Bench: https://www.astorbannerman.co.uk/product/nivano/

    Updates

    17

    • Mr Jamie Palfrey2 years ago
      Mr Jamie Palfrey

      Mr Jamie Palfrey

      2 years ago
      Update from the Page owner

      Wow, we did it! Thank you so much for all those that have supported our cause so far! It has meant the world. We will continue to so that we can possibly raise further funds o that we can purchase some specialist sensory equipment for Aida's bedroom and specialist buggy. Thankyou!

      Share this update to help us raise more

    • Mr Jamie Palfrey2 years ago
      Mr Jamie Palfrey

      Mr Jamie Palfrey

      2 years ago

      The lion is about to eat me! :)

      Update from the Page owner

      Share this update to help us raise more

    • Mr Jamie Palfrey2 years ago
      Mr Jamie Palfrey

      Mr Jamie Palfrey

      2 years ago

      Update from the Page owner

      Share this update to help us raise more

    2 years ago

    Mr Jamie Palfrey started crowdfunding

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    Page last updated on: 12/16/2020 19.21

    Supporters

    61

    • Anonymous

      Anonymous

      Dec 16, 2020

      Hope it helps along the way :)

    • Anonymous

      Anonymous

      Dec 15, 2020

      Have a day off from the walking tomorrow, you’ve earned it!

    • Anonymous

      Anonymous

      Dec 15, 2020

    • Simon Bennett

      Simon Bennett

      Nov 10, 2020

      Good Luck Aida!

      £20.00

    • Anonymous

      Anonymous

      Oct 31, 2020

      Crack on, love your spirit

    • Anonymous

      Anonymous

      Oct 31, 2020

      £20.00

    • Joanne

      Joanne

      Oct 30, 2020

      What a great kid! All the best.

      £30.00

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    Mr Jamie Palfrey

    Mr Jamie Palfrey

    ST. NEOTS

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