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a Collyer-page raised £3,211.98 from 151 supporters

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Closed 03/07/2020

40%
£3,211
raised of £8,000 target by 151 supporters

    Weʼve raised £3,211 to help make my garden safe and accessible for my son Tyler.

    Huntingdon, Cambridgeshire
    Funded on Friday, 3rd July 2020

    What is crowdfunding?

    Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered nonprofit.

    The page owner is responsible for the distribution of funds raised.

    Story

    My beautiful son Tyler is 4 years old. He was born with a rare life limiting brain condition called Lissencephaly. His brain didn’t grow correctly and is missing most of the folds that a normal brain has, that stores information. This has also caused Tyler to have uncontrollable (refractory) Epilepsy, Microcephaly, Ocular Motor Apraxia in both eyes, Global developmental delay, moderate spinal scoliosis, mild hip dysplasia, along with being non mobile, non verbal and tube fed.

    Tyler lives with constant epileptic activity in his brain. He has between 2-6 clusters of seizures in a 24 hour period; and in those clusters he has between 30-100 epileptic spasms. It takes it out of him every single time. He is due to have surgery at Addenbrookes hospital tomorrow (20/01/2020) to have a VNS device implanted in his chest and neck to hopefully stop or help slow down his seizures. No medication has worked for him, nor has the Keto diet, and because of his brain malformation and the fact he is non mobile, this means he isn’t a candidate for brain surgery. He’s completely dependent on me, his neurologists, doctors, therapists, his family, his carers, including those at his special needs school- where he loves going and thrives. In spite of all of his needs, Tyler is the sweetest, happiest, cheekiest, most loving little boy! He loves cuddles, and giving out kisses, he’s always giggling and has been copying me lots this year which is so exciting!

    Due to tylers condition he is completely dependent on physiotherapy equipment; a standing frame, wheelchair, specialist highchair, specialist car seat, bath seat, changing bench, physio bench, amongst other things; and these items are pretty bulky and take up a lot of space in our little bungalow. The bigger he gets, the smaller our home gets and at 4 foot tall already we’re slightly cramped! It’s just me and Tyler at home, so the strain on my back is evident when I keep having to move everything out of the way to access whichever piece of equipment he needs.

    We have such a huge garden that has just had a ramp installed- but unfortunately it’s not safe nor accessible for Tyler to enjoy yet. I’m looking to turn a corner of it into a safe sensory play area for Tyler to be able to sit outside and enjoy the warm weather with appropriate outdoor toys, and also install a large summer house at the back of the garden along with a safe path to get to it. I’d love to be able to set up his equipment ready for physio in the summerhouse, and set up a quiet safe space for him to be able to roll around and explore without bumping into things, with music and lights, all year round.

    Due to the amount of work that needs doing, including levelling out the garden, laying down the summer house base, and all the materials and labour needed, it’s going to cost around a staggering £8k. EDIT; I originally planned for £5000, but after getting two quotes for the landscaping I have had to increase the amount needed to do this for him 😳

    I really believe this will improve Tyler’s quality of life and I’m determined to keep the consequences of his condition at bay for as long as possible by helping him develop and learn and strengthen himself in the best way I possibly can!

    If you have made it this far, thank you for reading my little boys story, and for anyone that is willing to help, THANK YOU from the bottom of my heart ❤️💜

    Updates

    2

    • a Collyer-page2 years ago
      a Collyer-page

      a Collyer-page

      2 years ago
      Update from the Page owner

      Share this update to help us raise more

    • a Collyer-page2 years ago
      a Collyer-page

      a Collyer-page

      2 years ago

      This is Tylers thank you smile to everyone that has either donated or shared his story! 💜

      Update from the Page owner

      Share this update to help us raise more

    2 years ago

    a Collyer-page started crowdfunding

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    Page last updated on: 7/2/2020 12.28

    Supporters

    151

    • Zoey

      Zoey

      Jul 2, 2020

      Xxxx

    • Anonymous

      Anonymous

      Jul 2, 2020

    • Jade

      Jade

      Jun 19, 2020

      Love you both xx

      £20.00

    • Jodie Newton

      Jodie Newton

      May 1, 2020

      hi Aimee. Money towards Tyler's garden from my Avon raffle x

      £59.00

    • Sarah Bray

      Sarah Bray

      Apr 30, 2020

      Raffling two hampers of Avon products, in aid of Tyler’s Garden. Thanks to the Haywain for selling tickets and to the customers for buying them. Hopefully you get the garden this year Xx

      £125.00

    • Gina Cruickshank

      Gina Cruickshank

      Mar 21, 2020

      Hope you reach your target and get the garden Tyler needs

      £20.00

    • Steve James

      Steve James

      Mar 18, 2020

      £10.00

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    About Crowdfunding
    About the fundraiser
    a Collyer-page

    a Collyer-page

    Huntingdon, Cambridgeshire

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