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£525raised of £1,000 target by 28 supporters

Weʼre raising £1,000 to help Barney and his family get a vehicle that can support his needs by cycling 200 miles across gnarly open countryside and hilly terrain.

Ashton under Hill,Worcestershire

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Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.

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Story

How do you possibly cope when you're told that your child has a rare brain disorder and will live a very short life, possibly to the age of 2 years old! - this is the devastating news Bev and Andy had to come to terms with after Barney became unwell at 6 months old and started having seizures. After much time in hospital, and every test, x-ray, scan going, he was diagnosed with rare life limiting condition called Lissencephaly. Which literally means smooth brain. He has a structural brain abnormality which can never be fixed with an operation. Barney will always suffer with seizures as part of this condition. He requires anti epileptic drugs and will do his whole life. He has severe global delay and needs help in all aspects of his life. Barney, Bev and Andy have recently had an extension to give him a wet room and lift up to his bedroom. The extension build was all at their own cost, then they received funding for his lift and wet room. This was a huge relief on them all as a family. Barney is now 8 years old! His seizures have recently become more complex and he has needed hospitalization 6 times already this year. He now has an NG tube for feeding and medication and has started a new Ketogenic diet which is extremely complex and requires precision in the preparation of every meal and medication. Bev has had to give up her job to become Barneys full time carer. Her and Andy devote their whole lives to giving Barney everything they can to enable him to live a life to the best of his ability. Their next major purchase is for a wheelchair adapted vehicle. Barney is very heavy and lifting him in and out of the car is becoming a huge challenge. His wheelchair is also no longer meeting his needs and is pointed out as being urgent by medical professionals at every meeting! but the next option of wheelchair is only possible with an adapted vehicle. To get a vehicle that meets his needs requires £10,000 over and above the motability allowance. This will put a huge financial strain on Bev and Andy, whilst they know it is essential for Barney, its not something they can just afford to purchase. Balancing his complex needs whilst considering financial burden is incredibly stressful and upsetting.

Barney is such a smiley happy boy despite everything he has to deal with, you fall in love with him when you meet him!. This is why I would like to raise money for him, to make his life that little bit easier, more comfortable and just to meet his growing needs which are a necessity.

Please sponsor me to help this adorable local boy. I am off-road mountain biking 200miles from Whitehaven to Scarborough across challenging landscapes of the Lake District, Yorkshire Dales and North York Moors This is 10-12th August 2018. An arduous challenge so please give generously to this hugely deserving cause

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Updates

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  • Alan Hewitt25 days ago
    Alan Hewitt

    Alan Hewitt

    25 days ago
    Update from the Page owner

    Thank you to all those that have donated. Please share so that I we can get even closer to the target!

    Share this update to help us raise more

3 months ago

Alan Hewitt started crowdfunding

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Page last updated on: 8/11/2018 1:39 PM

Supporters

28

  • Louise Locke

    Louise Locke

    Aug 11, 2018

    Well done Alan what a star you are to raise money for our village superstar. ❤️

    £20.00

  • Lindsay Beardsell

    Lindsay Beardsell

    Jun 15, 2018

    £30.00

  • Caroll Preston

    Caroll Preston

    Jun 12, 2018

    Well done you, to make a difference will be something very special xx

    £10.00

  • Simon Backhouse

    Simon Backhouse

    May 31, 2018

    Best of luck Al. Tough challenge!

    £20.00

  • James John

    James John

    May 21, 2018

    £10.00

  • Keith Le Grange

    Keith Le Grange

    May 21, 2018

    £10.00

  • Kate and Kris Sullivan

    Kate and Kris Sullivan

    May 16, 2018

    Go for it Al

    £20.00

Alan Hewitt

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About the fundraiser
Alan Hewitt

Alan Hewitt

Ashton under Hill,Worcestershire

Enjoys Mountain biking

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