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Alan Hewitt raised £525 from 28 supporters

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Closed 19/08/2018

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£525raised of £1,000 target by 28 supporters

    Weʼve raised £525 to help Barney and his family get a vehicle that can support his needs by cycling 200 miles across gnarly open countryside and hilly terrain.

    Ashton under Hill,Worcestershire
    Funded on Sunday, 19th August 2018

    What is crowdfunding?

    Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.

    The page owner is responsible for the distribution of funds raised.

    Story

    How do you possibly cope when you're told that your child has a rare brain disorder and will live a very short life, possibly to the age of 2 years old! - this is the devastating news Bev and Andy had to come to terms with after Barney became unwell at 6 months old and started having seizures. After much time in hospital, and every test, x-ray, scan going, he was diagnosed with rare life limiting condition called Lissencephaly. Which literally means smooth brain. He has a structural brain abnormality which can never be fixed with an operation. Barney will always suffer with seizures as part of this condition. He requires anti epileptic drugs and will do his whole life. He has severe global delay and needs help in all aspects of his life. Barney, Bev and Andy have recently had an extension to give him a wet room and lift up to his bedroom. The extension build was all at their own cost, then they received funding for his lift and wet room. This was a huge relief on them all as a family. Barney is now 8 years old! His seizures have recently become more complex and he has needed hospitalization 6 times already this year. He now has an NG tube for feeding and medication and has started a new Ketogenic diet which is extremely complex and requires precision in the preparation of every meal and medication. Bev has had to give up her job to become Barneys full time carer. Her and Andy devote their whole lives to giving Barney everything they can to enable him to live a life to the best of his ability. Their next major purchase is for a wheelchair adapted vehicle. Barney is very heavy and lifting him in and out of the car is becoming a huge challenge. His wheelchair is also no longer meeting his needs and is pointed out as being urgent by medical professionals at every meeting! but the next option of wheelchair is only possible with an adapted vehicle. To get a vehicle that meets his needs requires £10,000 over and above the motability allowance. This will put a huge financial strain on Bev and Andy, whilst they know it is essential for Barney, its not something they can just afford to purchase. Balancing his complex needs whilst considering financial burden is incredibly stressful and upsetting.

    Barney is such a smiley happy boy despite everything he has to deal with, you fall in love with him when you meet him!. This is why I would like to raise money for him, to make his life that little bit easier, more comfortable and just to meet his growing needs which are a necessity.

    Please sponsor me to help this adorable local boy. I am off-road mountain biking 200miles from Whitehaven to Scarborough across challenging landscapes of the Lake District, Yorkshire Dales and North York Moors This is 10-12th August 2018. An arduous challenge so please give generously to this hugely deserving cause

    Updates

    1

    • Alan Hewitt5 months ago
      Alan Hewitt

      Alan Hewitt

      5 months ago
      Update from the Page owner

      Thank you to all those that have donated. Please share so that I we can get even closer to the target!

      Share this update to help us raise more

    7 months ago

    Alan Hewitt started crowdfunding

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    Page last updated on: 8/11/2018 1:39 PM

    Supporters

    28

    • Louise Locke

      Louise Locke

      Aug 11, 2018

      Well done Alan what a star you are to raise money for our village superstar. ❤️

      £20.00

    • Lindsay Beardsell

      Lindsay Beardsell

      Jun 15, 2018

      £30.00

    • Caroll Preston

      Caroll Preston

      Jun 12, 2018

      Well done you, to make a difference will be something very special xx

      £10.00

    • Simon Backhouse

      Simon Backhouse

      May 31, 2018

      Best of luck Al. Tough challenge!

      £20.00

    • James John

      James John

      May 21, 2018

      £10.00

    • Keith Le Grange

      Keith Le Grange

      May 21, 2018

      £10.00

    • Kate and Kris Sullivan

      Kate and Kris Sullivan

      May 16, 2018

      Go for it Al

      £20.00

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    About Crowdfunding
    About the fundraiser
    Alan Hewitt

    Alan Hewitt

    Ashton under Hill,Worcestershire

    Enjoys Mountain biking

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