Weʼre raising £10,000 to Help raise money for Build for Shay and also Joni's Army, so we can help sick and impaired children.
Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.
The page owner is responsible for the distribution of funds raised.
Shay in April 2008 was diagnosed with Pearson's Syndrome a Mitochondrial disease with no cure. Pearson syndrome is very rare, less than a hundred cases have been reported worldwide. Not many people know about Mitochondrial Disease, there are few supportive treatments relieving symptoms but at this present time there is no cure.
Our mitochondrial cells are like power stations in our bodies, supplying the energy every cell needs to function. These cells make up our organs and tissues within our bodies. Shay’s cells do not have the energy to make his body organs work properly for example, if a car does not have enough battery power, the car will not start or suddenly stop, no matter how new that car is.
Shay is 11 years old and this disease is progressing with devastating effects on his health. His one love is his Xbox and he is now having trouble holding on to things along with vision loss, hearing loss and overall muscular weakness. This is heart breaking to see and we want him to have the comfort and quality of life before it is too late.
We are raising funds to help fund the items he requires to keep him independent and have a fully enjoyable carefree life. Also to support a fantastic charity called Joni's Army, which has helped Shay achieve his goals, given him emotional support and also supported his family. This charity has been amazing, supported shay when he found it hard to take some medicine, given him great joy with the bonds they have created between each other.
Joni's Army help sick and impaired children, give them the help they need to get the medical treatment and equipment they need. They also carry out acts of kindness in the name of the beautiful young Joni who passed away aged 9yrs. Joni's Army have helped shay become a better Powerchair footballer by buying a unique Football Powerchair.
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Alan Murray started crowdfunding
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Feb 1, 2019
All the best Alan, Neil Adams DL015 16th Jan!
Jan 26, 2019
Jan 24, 2019
Jan 20, 2019
A great cause and a great dad. All the best in making the number
Dec 12, 2018
Good luck Bid. You will smash it. Just think of the beer waiting for you at the end!!
Nov 30, 2018
Good luck with raising the funds to help Shay.
Sep 30, 2018
All the best. Sending love! xoxo
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