Weʼre raising £950 to Get better quality equipment for my Sleep Apnoea diagnosed aligned with my muscular dystrophy which will improve my day to day activities.
Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered nonprofit.
The page owner is responsible for the distribution of funds raised.
I currently suffer with Muscular Dystrophy and was only diagnosed last Aug18.
As part of these tests I was sent to a sleep specialist who has diagnosed me with severe sleep apnoea. The average person stops breathing 5x per hour however, I stop 35 times per hour meaning I only get 45min of deep sleep per night.
I suffer massively with day time fatigue especially after a busy week at work.
The reason and benefits for fund raising is that I can obtain a better quality machine much sooner which means I can feel the benefits sooner even if that takes a further 6-12 weeks.
If I wait for a NHS machine it could take nearly 4 months (currently can not get any appointments) and the machine will not give me the best outcome vs the equipment I am looking to obtain. This specialist equipment will have download able readings for me and my doctor, I'm hoping a nicer mask which I will need to use everynight, it will also have a nebuliser which will support my throat during treatment.
The machine will last 8 years and by that time will have saved for a new one and the mask and tubes every 12months again I can save for.
I was diagnosed about 2/3 weeks ago privately but they will not cover equipment costs and this is why I'm asking for any support.
Thanks in advance if your are able to support as this will change my life and give me the energy to push on.
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About the fundraiser
I currently work for a financial institution and I'd like to continue doing this and believe the benefits of my treatment will help me do this by giving me the energy levels I need.