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£1,680raised of £1,500 target by 66 supporters

Weʼre raising £1,500 to help adults with Williams syndrome from Serbia attend their first ever WS camp in Skegness, UK.

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Story

I have been doing research on language development in Williams syndrome (WS), a rare genetic disorder, for more than a decade now, primarily in the US and the UK. However, this disorder is almost unknown in the countries of the former Yugoslavia, where I'm from. When visiting Serbia 3 years ago, I identified several adults - completely by chance - who did not know they had WS and never got appropriate help for the medical issues that accompany WS, as the medical professionals were unaware of it. Since then, I have helped establish the first association for people with WS in the Balkans: please visit us at www.vilijamsovsindrom.com I have met dozens of lovely children, young adults and their families from Serbia, Montenegro and Bosnia who rely on our support. The UK WS Foundation has provided us with medical documents containing crucial information for parents and medical professionals which we have translated and sent to all our families. We are now applying for funding to organise workshops and raise awareness of WS in the region. It is important for our members to get connected with other families - locally and in Europe - they have a talent for languages! - so as part of the European Association for Williams Syndrome (FEWS) we have been invited to the UK WS convention and their camp which is taking place in Skegness in May 2018.

Here are pictures of Jelena from Belgrade with her mum, and Marko from Novi Sad with his teacher and myself. See also a story about Jelena on RTS2 where I feature for a few minutes! THANK YOU - HVALA!! https://www.youtube.com/watch?v=nXCTW5rkEus

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Updates

9

  • Alexandra Perovic3 months ago
    Alexandra Perovic

    Alexandra Perovic

    3 months ago

    Dear all We have made it! Last weekend, Marko, Jelena and their mums attended their very first WS summer camp! They were overwhelmed to see more than 400 families with children with the same condition as them! They made friends, went on trips, spoke to professionals working with WS - something they never had an opportunity to do before. THANK YOU SO MUCH for your help - without you, this wouldn't have been possible! If you still want to support the activities of our association in Serbia, please visit our website or do so via this website.

    Update from the Page owner

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  • Alexandra Perovic3 months ago
    Alexandra Perovic

    Alexandra Perovic

    3 months ago
    Update from the Page owner

    Thank you so much for your support so far: the £1000 so far have allowed us to pay for Jelena's, Marko's and their mums' visa costs and flights but we still need around £400 for train tickets from London to Skegness and for oyster cards while in London. Jelena and Marko are super excited - they are arriving next Thursday, and the camp is taking place next Friday, Saturday and Sunday. Please spread the word! I'll be putting this notice on my friends' facebook pages and will spam their inboxes once more - we only have one week to go!

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  • Alexandra Perovic3 months ago
    Alexandra Perovic

    Alexandra Perovic

    3 months ago

    I'm in my 6th week of the programme! It's a lot easier than I expected, but now I'm doing scary stints of 20 min non-stop running... Still haven't given up though! You can usually see me in Russell Square Gardens, and occasionally in Regent's Park, 3 times a week.

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5 months ago

Alexandra Perovic started crowdfunding

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Page last updated on: 7/7/2018 10:25 AM

Supporters

66

  • Thomas Doukas

    Thomas Doukas

    Jul 7, 2018

    Run like the wind Alex. Such a good cause. Well done. Thomas x

    £30.00

  • Georgina Spasic

    Georgina Spasic

    Jul 4, 2018

    £10.00

  • Stan Smiljanic

    Stan Smiljanic

    Jun 25, 2018

    Well done Alexandra, keep up the excellent work !

    £30.00

  • Ann Reynard

    Ann Reynard

    May 25, 2018

    Well done, Alex. Great total so far! Backing you all the way x

    £10.00

  • Eirini Sanoudaki

    Eirini Sanoudaki

    May 25, 2018

    £20.00

  • edit nemet

    edit nemet

    May 20, 2018

    £20.00

  • Grazia Mercedes  Sanna

    Grazia Mercedes Sanna

    May 18, 2018

Alexandra Perovic

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About the fundraiser
Alexandra Perovic

Alexandra Perovic

London, UK

I am doing Couch to 5k to raise money for the Serbian Association for Williams syndrome, for two of our members and their carers to attend the WS camp in Skegness, UK. We need money for their visa and travel costs; accommodation will be paid for by the European WS Federation.

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