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Erika Pope raised £285 from 12 supporters

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Closed 01/08/2019

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£285raised of £1,600 target by 12 supporters

    Weʼve raised £285 to Provide brace system for son Alex who is suffering with Pectus Carinatum

    Braintree Essex
    Funded on Thursday, 1st August 2019

    What is crowdfunding?

    Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered nonprofit.

    The page owner is responsible for the distribution of funds raised.

    Story

    What is Pectus Carinatim?

    Pectus carinatum is a chest wall deformity that causes the breastbone to push outward instead of being flush against the chest. It is also known as pigeon chest or keel chest. It affects 1 in 1500 children.

    When the chest wall develops, the cartilage that connects the ribs usually grows flat along the chest. In cases of pectus carinatum, this cartilage grows abnormally, causing unequal growth in the areas where the ribs connect to the sternum. This causes the outward appearance of the chest wall.

    Who are we raising money for?

    Our son, Alex, is 15 years old and is currently studying for his GCSE's. He has suffered with Pectus Carinatum severely since he was 12 years old. He suffers from pain and discomfort in his chest. He also suffers from a tightness with his breathing and has disturbed sleep due to his condition.

    He has become very anxious about his condition and feels very self conscious about it. Alex will not take part in swimming and feels unable to allow strangers or friends to see his chest.

    What are we raising money for?

    Alex is currently under the care of St. Barts hospital in London. We have Three options...

    1. Leave Alex as he is. Not a feasible option as He is understandably upset with his condition and does not want to suffer with this any longer.

    2. Wait until Alex is 18 and has stopped growing and opt for very invasive chest surgery to correct the chest wall. Again not a viable option for two reasons, Alex would like treatment sooner rather than later and also there is no guarantee that the NHS would fund his surgery at 18. This surgery would cost upward of £5000.

    3. Alex can be fitted with a T-joe bracing system to correct the deformity in his chest. The brace, which is made in America, is currently not fully funded by the NHS. It would have to be worn constantly for a whole year but has a very good success rate. We feel that this would be the best option for Alex, we can start treatment soon but we will have to help pay towards the cost. If we went private the cost would be around £4000 but with the NHS partly funding it the cost will be £1600.

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    Erika Pope

    Updates appear here

      6 months ago

      Erika Pope started crowdfunding

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      Page last updated on: 4/18/2019 16.53

      Supporters

      12

      • Anonymous

        Anonymous

        Apr 18, 2019

        Love Kelly, Blake & Isla x

        £50.00

      • Anonymous

        Anonymous

        Apr 9, 2019

        £20.00

      • Jude REDDAN

        Jude REDDAN

        Apr 8, 2019

        Sorry I can't give much but I hope it goes some way to helping x

        £5.00

      • Capt. Vague

        Capt. Vague

        Apr 8, 2019

        £20.00

      • Rob Reddan

        Rob Reddan

        Apr 8, 2019

        Good luck with this

        £10.00

      • Devilfrog

        Devilfrog

        Apr 8, 2019

      • Lee Cocksedge

        Lee Cocksedge

        Apr 8, 2019

        £20.00

      Great people make things happen

      Do you know anyone in need or maybe want to help a local community cause?

      Create you own page and donʼt let that cause go unfunded!

      About Crowdfunding
      About the fundraiser
      Erika Pope

      Erika Pope

      Braintree Essex

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