Alfie is fast out growing his current electric wheelchair, named Koala!!
Within the next year we aim to purchase Alfie a new electric chair that will fit him and that will offer him the quality of life of an active 7 year old boy should have.
The cost of the chair is £20,000. We are hoping to raise as much of this as possible privately. Hopefully we will be able to secure funding from a suitable charity but we cannot be sure until nearer the time of purchase.
There will be a few events held over the next year to raise funds towards Alfie's new chair. If anyone would like to sponsor via this website then your donation would be hugely appreciated and will go a long way to improving the quality of our little boy’s life!!!
A bit about SMA:
Alfie was born with a very rare, genetic condition called Spinal Muscular Atrophy (SMA).
SMA is an inherited neuromuscular condition which affects 1 in 10,000 babies born throughout the world each year.
SMA very specifically affects certain nerve cells in the spinal cord called lower motor neurons. These degenerate and consequently impair the link between the brain and the muscles. As these muscles can no longer be used, they start to wither due to inactivity.
The motor neurons affected in SMA are those which enable walking, crawling, arm and neck movement, and swallowing.
Alfie and others with SMA are unable to walk and show a generalised weakness and wasting of the muscles.
Alfie is however a very bright and funny kid. He very much enjoys winding up his parents and brother and has lots of friends at school.
Thank you all for reading this and for any donation that you may be able to make.
With love from Alex, Rowan, Charlie and most of all, the man himself ALFIE!!! xxx
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Nov 4, 2016
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