We did it!
Dave Jones raised £3,715 from 38 supporters
or
Start your own crowdfunding page
Closed 13/10/2017
Weʼve raised £3,715 to Help fund Alfie, who has severe epilepsy, to travel abroad to access medical cannabis which is currently unavailable in the UK legally
- Funded on Friday, 13th October 2017
Don't have time to donate right now?
Story
Myself, Andrew Hyden (Kingy) and Michael Edginton (Wedge) are cilimbing Mount Snowdon Saturday 30th September. Please read Alfies story below and then click donate. We really appreciate eveyones support.
Alfie’s Story: Alfie has a rare condition called PCDH19, which is a genetic disorder. It causes catastrophic clusters of seizures which are hard to control and are unresponsive to anti epilepsy drugs. His condition is not well understood and there is currently no research into medication for this condition other than that which is funded by the PCDH19 Alliance based in America.
When Alfie has a cluster of seizures currently he has to have an IV of steroids which can be up to 1000mgs three to five times depending on how bad his cluster is. Steroids are toxic and if used a lot can cause serious side effects. Alfie is currently having seizures on average every 7 days so he is receiving a lot of steroids.
We have done a lot of research into whole plant medical cannabis and have found many parents who are using it effectively to either reduce or stop very aggressive seizures.
We now have to raise enough money to take Alfie abroad so we can try this life saving medicine with him, in the hope that it gives him the chance of a normal and happy life.
Any money raised which is not used to support his and his family's travel and living expenses abroad will be used to enhance his life experience. We have set up a 'charity' bank account which will have four signatories, three of whom are independent from the family. Any money spent will have to have two signatories to sign it off.
Many thanks Alfie and his family xxx
Updates
0
Updates appear here
Dave Jones started crowdfunding
Leave a message of support
Supporters
38
Anonymous
Oct 12, 2017
£400.00
Anonymous
Oct 6, 2017
£690.00
Lee Collier
Oct 2, 2017
Well done Dave!
£10.00
Dave Jones
Oct 2, 2017
Money donated from my mother and mother in law.
£165.00
Colin Davis
Sep 30, 2017
Well done from colin Sandra jack
£30.00
Mandie Edginton
Sep 30, 2017
Good luck wedge n lads from georgene
£10.00
Andy Cottrill
Sep 30, 2017
Good luck, Dave!
£10.00
What is crowdfunding?
Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.
The page owner is responsible for the distribution of funds raised.
Great people make things happen
Do you know anyone in need or maybe want to help a local community cause?
Create you own page and donʼt let that cause go unfunded!
About Crowdfunding