I've raised £150000 to fundraise for my sons' Brody & Cooper Peden's fight against the life-limiting Duchenne Muscular Dystrophy Disease.

Organised by ALISON PEDEN
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Northern Ireland ·Health and medical

Story

Our sons, Brody (8) and Cooper (5) Peden are remarkable little boys - they are fighting a rare and severe form of muscular dystrophy that is both incurable and life-limiting. But thanks to the diligence of teachers and the expertise of medical professionals, they are making good progress. And you can help them on their journey.

Brody and Cooper’s Story

It all began when Brody’s teacher noticed that he couldn’t get off the floor as quickly as the other children after story time. We took Brody to the doctor and after physio, tests, and a referral to the Royal Victoria Hospital in Belfast and Guys and St Thomas Hospital in London, Brody was diagnosed with Duchenne Muscular Dystrophy (DMD). Six weeks later, Brody’s brother, Cooper, also tested positive for the same incurable disease.

Our lives were changed forever. We know this illness has the potential to end the lives of Brody and Cooper in their childhood.

The family circle communicated with other parents of children with Duchenne about researching experimental treatments and enrolled Brody in a study trial in USA, in the hope of being able to stave off the effects of the disease.

Brody and Cooper’s own fight against DMD then began.

The treatment made such a positive difference to Brody that we registered Cooper for the same research and returned to the US with both boys at the start of this year so they could each receive infusions.

How you can help

Both Brody and Cooper continue to make great progress. But it comes at a big financial cost to our family. And with infusions needed for both boys every three months, we simply can’t continue to fund the treatment without the help and support of family, friends and the local community.

The treatments for Brody and Cooper are extremely costly, and costs are amounting to $100,000 per year, however, it is worth every penny, as the treatments help prolong the boys’ lives and keep them walking until a cure for DMD is found.

You can help Brody and Cooper to continue their fight against Duchenne Muscular Dystrophy by donating today. Every penny donated will support their practical needs and make a real difference to these amazing little boys in their remarkable fight against Duchenne Muscular Dystrophy.

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About fundraiser

ALISON PEDEN
Organiser

Donation summary

Total
£1,210.00