Story
Help Us Give Our Little Girl the Chance She Deserves 💜
Our beautiful little girl was born on 07/11/2024, four weeks early, after she suffered an unexpected seizure while I was pregnant inside me. I was just 24 years old, a first-time mum, expecting what should have been the happiest day of my life. Instead, it became the most terrifying day of my life. Emergency alarms sounded, doctors and nurses rushed into the room, and my baby girl had to be delivered by emergency C-section to save both of us.
She was taken straight to the Neonatal Intensive Care Unit (NICU), where she spent the first two months of her life fighting every single day. As a first-time mum, those weeks were a blur filled with fear, uncertainty, and heartbreak. Every day I wondered if I was going to lose my precious little girl.
As time went on, she began having seizure after seizure, and they just wouldn’t stop. The doctors prepared us for the worst, warning us that the repeated seizures could leave her with brain damage. Hearing those words shattered us, but every time I looked at our daughter, all I could see was how beautiful and perfect she was. No matter how frightening things became, I never stopped believing in her. She continued to fight with incredible strength every single day she spent in NICU, and she showed us from the very beginning just how brave and determined she truly is.
Now, at just 20 months old, she continues to face challenges that no child should ever have to endure.
She has hypotonia, meaning she has very low muscle tone. She has no head control, cannot feed herself, and relies on us for every aspect of her daily life, requiring 24-hour care. She is also on the pathway to a diagnosis of cerebral palsy (CP), and we continue to face an uncertain future as we search for answers and the best possible care.
Our daughter also lives with drug-resistant epilepsy. She suffers from tonic-clonic seizures and terrifying episodes of apnea, where she stops breathing. We have come heartbreakingly close to losing her four times, and on three separate occasions she has needed to be placed on a ventilator to keep her alive.
Despite taking three different anti-seizure medications every day, her seizures continue. Watching your child fight so hard while knowing the medication isn’t enough is something no parent should ever have to experience.
After exhausting every option available to us, we have found an intensive specialist therapy programme abroad that offers hope. This therapy isn’t available to us locally, but it could give our daughter the opportunity to improve her strength, mobility, development, and overall quality of life.
Unfortunately, the cost of the therapy, along with travel, accommodation, specialist equipment, and ongoing medical expenses, is far beyond what we can manage on our own.
Asking for help is one of the hardest things we’ve ever had to do, but we would do absolutely anything for our little girl.
Every donation—no matter how big or small—brings us one step closer to giving her the chance she deserves. If you’re unable to donate, simply sharing our story with your family, friends, and community would mean the world to us.
Our daughter is the strongest little fighter we know. She has overcome more in her short life than many people ever will, yet she still smiles through it all. She continues to teach us what courage, strength, and determination truly look like. We refuse to give up on giving her every possible opportunity to thrive.
From the bottom of our hearts, thank you for taking the time to read our story. Thank you for your kindness, your prayers, your generosity, and for standing beside our family during the hardest journey of our lives.
Every share. Every donation. Every message of support gives us hope.
Thank you for helping us fight for our little girl.💜💚