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Closed 28/09/2017

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    Weʼve raised £0 to To help towards the £90,000 needed to give Freddy a fighting chance at life with life saving heart surgery by running the Bath Half

    Closed on Thursday, 28th September 2017

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    Story

    March 2018 I will be running the Bath Half and hopefully raising lots of money for a local family who need our support in helping their little boy. Please read below on all the information on his and his families journey for the last few years and why it's so important for us to raise this money for him.

    Please donate anything you can and help me push myself across that finishing line!

    Freddy is a cheeky 4 year old boy. However, he has a extremely rare and life threatening heart condition.

    At 4 months old Freddy had an out of hospital cardiac arrest. The family were told that there was only a 6-8% chance that he would survive. If he did survive they were told he wouldn't be the child we knew.

    But miracles happen and Freddy survived. Due to the amazing work of the paramedics and incredible CPR by our neighbour, Freddy is now 4, but still battling this horrid condition.

    Freddy was diagnosed with a cardiac tumour- a Fibroma in his left ventricle. The tumour is 5 cm by 3.5cm. It makes up much of his heart wall and fills 2/3rds of his ventricle.

    The tumour causes dangerous heart arrhythmias which make Freddys heart beat in excess of 200 beats per minute and can lead to sudden death by him going into cardiac arrest.

    To date Freddys has had 3 heart surgeries and has a defibrillator implanted in his tummy.

    There is no cardiac centre in the UK that have any experience in carrying out this surgery.

    Cardiac tumours occur in only 0.2 percent of the population. They are completely random and is not a genetic condition. Most children present within the first year of life and unfortunately 33 percent do not survive.

    Boston Children's Hospital in the US is the leading centre in the world. From 1990 to date they have managed 27 cases. Since 2013 they have successfully removed 7 fibromas in children whose life threatening rhythms have disappeared once the tumour has been removed.

    Freddys arrhythmia burden is controlled by medication. However due to serious side effects of the medication this is not a long term solution.

    Freddy now needs to go to Boston to have life saving treatment to remove the tumour.

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    Amelia Norton

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      10 months ago

      Amelia Norton started crowdfunding

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      Page last updated on: 8/29/2017 7:36 PM

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        Amelia Norton

        Amelia Norton

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