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Vicky Robinson raised £8,040 from 225 supporters

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Closed 30/11/2018

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£8,040raised of £3,000 target by 225 supporters

    Weʼve raised £8,040 to help fund overseas living expenses and outings to make Amelia's proton beam therapy for a cancerous brain tumour a more positive experience

    Funded on Friday, 30th November 2018

    What is crowdfunding?

    Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.

    The page owner is responsible for the distribution of funds raised.

    Story

    My 4 year old daughter Amelia has just been diagnosed with a high grade neuroepithelial brain tumour with MN1 alterations. This is a rare kind of brain tumour with around 30 children affected in the whole of Europe. This means we have to travel overseas to receive Proton Beam Therapy.

    Proton Beam Therapy is a type of radiotherapy that uses Protons (energised particles), instead of beams of x - rays, that are used in conventional radiotherapy. The benefits of Proton Beam Therapy over conventional radiotherapy is that the beams are carefully planned to target the exact area the tumour is situated with complete accuracy, meaning fewer healthy cells nearby receive a dose of radiation. This is particularly important in young children as their brains are still growing and developing. Proton Beam Therapy has fewer long term side effects such as impaired growth, learning, memory and infertility. Proton Beam Therapy is currently unavailable in the UK but is available in two countries overseas.

    We have been told that Proton Beam Therapy is the best option for Amelia's rare type of tumour and that she is eligible to receive this treatment funded by the NHS. The funding covers travel, accommodation and treatment but does not cover meals, laundering, toiletries, comforts for Amelia whilst there and other living expenses. We also want to make this treatment as painless and as positive as we can for her, so we would like to be able to take her on outings whilst receiving treatment. We are expected to be overseas for a total of 9 weeks, this is going to be a challenging time for us as we will be away from home comforts and the support of family / friends.

    This overseas treatment is an expense that we were unprepared for as Amelia has to start treatment as soon as possible we have not had time to save up. We are not from a wealthy family nor can afford to get in to masses of debt that will be payable years after treatment has ended. Any donation big or small would be extremely appreciated.

    I have decided to create a blog capturing every step of Amelia's journey from beginning to end to raise awareness of childhood brain tumours and to provide comfort and support to others that are going through similar experiences. This blog will include diaries, photos, videos and resourceful information.

    Thank you for reading our story.

    You can follow the journey with the following links.

    https://ameliasplayroom.wordpress.com

    https://www.facebook.com/ameliasplayroom/

    https://www.youtube.com/channel/UCNlKOTmu-X4KhlHfL09TUUQ

    Updates

    9

    • Vicky Robinson3 months ago
      Vicky Robinson

      Vicky Robinson

      3 months ago

      https://teespring.com/en-GB/ameliasplayroomtshirt#pid=389&cid=100029&sid=front Order your Amelia’s Playroom T Shirts here 50% of t shorts purchased go to the Brain Tumour Charity

      Share this update to help us raise more

    • Vicky Robinson4 months ago
      Vicky Robinson

      Vicky Robinson

      4 months ago

      Day 4 of treatment All is well, treatment done and waking up from sedation Amelia is such a fantastic little girl I’m so proud of her 💖💖💖

      Update from the Page owner

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    • Vicky Robinson4 months ago
      Vicky Robinson

      Vicky Robinson

      4 months ago

      Day 3 of treatment, all gone well. Had to get cream for her head as her surgery scar was getting itchy from having the proton beam on that area too. Off to the Sea world and legoland now to give her a fun day thanks to all you guys ❤️

      Update from the Page owner

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    5 months ago

    Vicky Robinson started crowdfunding

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    Page last updated on: 10/11/2018 6:06 PM

    Supporters

    225

    • Clayton Cricket Club

      Clayton Cricket Club

      Oct 11, 2018

      Lots of love from all your friends at Clayton Cricket Club

      £300.00

    • Keith Wright

      Keith Wright

      Oct 5, 2018

      All Leeds together

      £10.00

    • N swift

      N swift

      Sep 29, 2018

      I pray all treatments are a success x

      £50.00

    • Claire Elson

      Claire Elson

      Sep 26, 2018

      You're such an inspiration Amelia. Keep going you brave big girl. You're in my thoughts at this difficult time Vicky you're a brilliant mum. Stay strong xx

      £10.00

    • Tracey

      Tracey

      Sep 18, 2018

      Good luck with your fundraising.Sending best wishes to you and your beautiful little girl.

      £10.00

    • Matthew Best

      Matthew Best

      Sep 18, 2018

      £30.00

    • Joanne Ridgway

      Joanne Ridgway

      Sep 14, 2018

      Good luck Amelia. I will help look after Aunty Sam. Jo

      £30.00

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    Vicky Robinson

    Vicky Robinson

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