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£6,495raised of £3,000 target by 205 supporters

Weʼre raising £3,000 to help fund overseas living expenses and outings to make Amelia's proton beam therapy for a cancerous brain tumour a more positive experience

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Story

My 4 year old daughter Amelia has just been diagnosed with a high grade neuroepithelial brain tumour with MN1 alterations. This is a rare kind of brain tumour with around 30 children affected in the whole of Europe. This means we have to travel overseas to receive Proton Beam Therapy.

Proton Beam Therapy is a type of radiotherapy that uses Protons (energised particles), instead of beams of x - rays, that are used in conventional radiotherapy. The benefits of Proton Beam Therapy over conventional radiotherapy is that the beams are carefully planned to target the exact area the tumour is situated with complete accuracy, meaning fewer healthy cells nearby receive a dose of radiation. This is particularly important in young children as their brains are still growing and developing. Proton Beam Therapy has fewer long term side effects such as impaired growth, learning, memory and infertility. Proton Beam Therapy is currently unavailable in the UK but is available in two countries overseas.

We have been told that Proton Beam Therapy is the best option for Amelia's rare type of tumour and that she is eligible to receive this treatment funded by the NHS. The funding covers travel, accommodation and treatment but does not cover meals, laundering, toiletries, comforts for Amelia whilst there and other living expenses. We also want to make this treatment as painless and as positive as we can for her, so we would like to be able to take her on outings whilst receiving treatment. We are expected to be overseas for a total of 9 weeks, this is going to be a challenging time for us as we will be away from home comforts and the support of family / friends.

This overseas treatment is an expense that we were unprepared for as Amelia has to start treatment as soon as possible we have not had time to save up. We are not from a wealthy family nor can afford to get in to masses of debt that will be payable years after treatment has ended. Any donation big or small would be extremely appreciated.

I have decided to create a blog capturing every step of Amelia's journey from beginning to end to raise awareness of childhood brain tumours and to provide comfort and support to others that are going through similar experiences. This blog will include diaries, photos, videos and resourceful information.

Thank you for reading our story.

You can follow the journey with the following links.

https://ameliasplayroom.wordpress.com

https://www.facebook.com/ameliasplayroom/

https://www.youtube.com/channel/UCNlKOTmu-X4KhlHfL09TUUQ

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Updates

3

  • Vicky Robinson9 days ago
    Vicky Robinson

    Vicky Robinson

    9 days ago

    Could everyone please share and come to this fantastic event organised kindly by Sue Dickerson for my Amelia. Thank you x

    Update from the Page owner

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  • Vicky Robinson12 days ago
    Vicky Robinson

    Vicky Robinson

    12 days ago
    Update from the Page owner

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  • Vicky Robinson13 days ago
    Vicky Robinson

    Vicky Robinson

    13 days ago

    Unfortunately we have to minus £500 because it has debited someone twice. We also have to take around £250 off for fees to JustGiving. Please help us get this so we have £5000. We would need another £500 to do this. Your generosity is just amazing and I thank you all from the bottom of my heart xxx

    Share this update to help us raise more

17 days ago

Vicky Robinson started crowdfunding

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Page last updated on: 8/20/2018 7:47 AM

Supporters

205

  • Sarah Simpson

    Sarah Simpson

    Aug 20, 2018

    Good luck! Xx

    £10.00

  • Dean James

    Dean James

    Aug 19, 2018

    £20.00

  • Judith Baines

    Judith Baines

    Aug 19, 2018

    Thinking of you all. 💞💞💞💞

    £10.00

  • Anonymous

    Anonymous

    Aug 18, 2018

    Sending love and hugs and best wishes for a speedy recovery for your gorgeous daughter, Amelia.

    £20.00

  • Anonymous

    Anonymous

    Aug 18, 2018

  • Carmel Wilkinson

    Carmel Wilkinson

    Aug 18, 2018

    Hi Vicky,Kylla sends this with love xx

    £20.00

  • Carole Gorman

    Carole Gorman

    Aug 17, 2018

    Vicky this is from Angela McGinn, she wishes you all the best

    £30.00

Vicky Robinson

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Vicky Robinson

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