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£290raised of £1,000 target by 25 supporters

Weʼre raising £1,000 to We want to give Callum the send off he deserves

Brynmawr, Ebbw Vale, UK

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Callum was born healthy by c section due to being breach he was fine till he was five weeks old then the reflux came and the fits he was having nineteen fits a day witch ended up in hospital for 3mths after all test lumber punchers and scans the put it down to epilepsy

So was on a lot of meds and still is now we he did have a massive fit that nearly lost is life to it was not nice so after that his fits was more controlled so they let him come home

About 2years after that we found out that it wasn't just epilepsy it was a rare form of epilepsy called ohtahara syndrome the doctor explained the it come with limited life but it not the epilepsy that could kill him it's the recurring chest infections that would it was hard for my husband to take in that we could lose our boy Callum but I explained it to him and he understands now

Days weeks go on we started learning about Callum conditions he has unsafe swollow so he had to have peg fitted due to that he has got cerbral palsy scholiosis curvature of the spine

Twisted neck suplication of the general head

Callum has been ventilated 5 times due to his chest he had rhino virus pnamoniea fluied on the lungs


Callum has lost a lot of his family member is aunties and his grandad who he was very close to

I hope I covered it all any questions please feel . ted Callum t to erves f o give

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  • amie sainsbury2 days ago
    amie sainsbury

    amie sainsbury

    2 days ago
    Update from the Page owner

    Wow this is amazing thank you so much

    Share this update to help us raise more

  • amie sainsbury13 days ago
    amie sainsbury

    amie sainsbury

    13 days ago

    Still a long way to go come on guys let's do this

    Share this update to help us raise more

18 days ago

amie sainsbury started crowdfunding

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Page last updated on: 12/14/2018 7:02 AM



  • Kirsty Clay

    Kirsty Clay

    Dec 14, 2018

    Thinking of you all at this sad time 💖💖


  • Laura Weed

    Laura Weed

    Dec 13, 2018

    So sorry for your loss


  • Bryan (loafa) somers

    Bryan (loafa) somers

    Dec 13, 2018

    So sorry for your loss. Hope this helps towards it xxx


  • Claire and Matthew

    Claire and Matthew

    Dec 13, 2018

    So very sorry for your loss! Thinking of you all and sending love.


  • Anonymous


    Dec 13, 2018



  • Tom Edwards

    Tom Edwards

    Dec 13, 2018

    So sorry for your loss ❤️


  • kevin elmore

    kevin elmore

    Dec 13, 2018

    So sorry for your loss


amie sainsbury

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About the fundraiser
amie sainsbury

amie sainsbury

Brynmawr, Ebbw Vale, UK

I miss him badly

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