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Amy Probert

Amy Probert is crowdfunding

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£1,035raised of £2,500 target by 15 supporters

Weʼre raising £2,500 to Purchase a nannobubble pump from the USA for our daughter.

What is crowdfunding?

Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered nonprofit.

The page owner is responsible for the distribution of funds raised.

Story

Many people who know us will know that our youngest daughter was born with an extremely rare and severe skin disorder called Harlequin Ichthyosis.
This is a mutation in a gene that controls skin growth and structure which means that Poppy rapidly produces excess skin and also lacks fatty layers that give our skin elasticity to make it 'stretchy'. This means that her skin also cracks very easily. The disorder can limit movement, hearing and eyesight, puts her at risk of dehydration, means that she cannot regulate her body temperate and also puts her at risk of severe and life threatening infections.
We are raising money for a 'nannobubble portable pump'. This is a piece of equipment that oxygenates the water differently which helps excess skin to shed more effectively, helps movement of limbs and reduces risk of infection. We are purchasing the pump from a company in America called the 'White Water Company'.
In total, we need to raise around £6000 to allow for cost of the pump, insurance, income tax and delivery charge.
Poppy's disorder is lifelong and cannot be cured, symptoms are managed via heavy emollients and long, daily baths in addition to many other things such as physiotherapy and regular appointments with various medical teams.
We'd love to be able to raise money for a Nannobubble pump in the hope of generally making Poppy's bathing routine as effective as possible.
Should we go over the donation target, the money will be spent on getting Poppy a Dyson heater/cooler to help her transition into the different seasons as this is always an ongoing challenge.

A final note to say, Poppy is a happy, loving little girl and is not defined by her disorder. She makes us all proud each day and has the BEST brother and sister!
We all love you loads, Mom, Dad, Kaydon, Isabella and your partner in crime, 'Our black doggy!' Xxx

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Updates

1

  • Amy Probert13 days ago
    Amy Probert

    Amy Probert

    13 days ago
    Update from the Page owner

    We're a quarter of the way there. From the bottom of my heart, thank you SO much xxx

    Share this update to help us raise more

17 days ago

Amy Probert started crowdfunding

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Page last updated on: 6/15/2019 20.45

Supporters

15

  • Rachel Purchase

    Rachel Purchase

    Jun 15, 2019

    Having known tommo for many years I’ve watch Poppy from birth just hope this helps along the way to get Poppy her Pump ASAP xx

    £50.00

  • Steve Baxter

    Steve Baxter

    Jun 12, 2019

    From all the customers at Sweet Memories Good luck poppy x

    £200.00

  • Anonymous

    Anonymous

    Jun 10, 2019

  • Anonymous

    Anonymous

    Jun 8, 2019

    Amy and Tommo you are both amazing parent's, Poppy deserves the very best. ❤

    £10.00

  • c clayton

    c clayton

    Jun 8, 2019

    sending love and support your way

    £100.00

  • Aunty Kaff and Dave

    Aunty Kaff and Dave

    Jun 4, 2019

    Hope you get to raise it all,Good luck x

  • Anonymous

    Anonymous

    Jun 4, 2019

    £10.00

Amy Probert

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Amy Probert

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