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Amy Probert raised £1,235 from 21 supporters

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Closed 31/08/2019

0%
£1,235
raised of £2,500 target by 21 supporters

    Weʼve raised £1,235 to Purchase a nannobubble pump from the USA for our daughter.

    Funded on Saturday, 31st August 2019

    What is crowdfunding?

    Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered nonprofit.

    The page owner is responsible for the distribution of funds raised.

    Story

    Many people who know us will know that our youngest daughter was born with an extremely rare and severe skin disorder called Harlequin Ichthyosis.
    This is a mutation in a gene that controls skin growth and structure which means that Poppy rapidly produces excess skin and also lacks fatty layers that give our skin elasticity to make it 'stretchy'. This means that her skin also cracks very easily. The disorder can limit movement, hearing and eyesight, puts her at risk of dehydration, means that she cannot regulate her body temperate and also puts her at risk of severe and life threatening infections.
    We are raising money for a 'nannobubble portable pump'. This is a piece of equipment that oxygenates the water differently which helps excess skin to shed more effectively, helps movement of limbs and reduces risk of infection. We are purchasing the pump from a company in America called the 'White Water Company'.
    In total, we need to raise around £6000 to allow for cost of the pump, insurance, income tax and delivery charge.
    Poppy's disorder is lifelong and cannot be cured, symptoms are managed via heavy emollients and long, daily baths in addition to many other things such as physiotherapy and regular appointments with various medical teams.
    We'd love to be able to raise money for a Nannobubble pump in the hope of generally making Poppy's bathing routine as effective as possible.
    Should we go over the donation target, the money will be spent on getting Poppy a Dyson heater/cooler to help her transition into the different seasons as this is always an ongoing challenge.

    A final note to say, Poppy is a happy, loving little girl and is not defined by her disorder. She makes us all proud each day and has the BEST brother and sister!
    We all love you loads, Mom, Dad, Kaydon, Isabella and your partner in crime, 'Our black doggy!' Xxx

    Updates

    1

    • Amy Probert6 months ago
      Amy Probert

      Amy Probert

      6 months ago
      Update from the Page owner

      We're a quarter of the way there. From the bottom of my heart, thank you SO much xxx

      Share this update to help us raise more

    7 months ago

    Amy Probert started crowdfunding

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    Page last updated on: 8/14/2019 11.40

    Supporters

    21

    • Lydia Peters

      Lydia Peters

      Aug 14, 2019

      £10.00

    • Steve Baxter

      Steve Baxter

      Jun 19, 2019

      Great BIG thank you 🙏 to all our customers at Sweet Memories their was another £100 in tin 🥫 today on behalf of Little Poppy and her mom and dad thank you 🙏 so so much 🙏💕 xx

      £100.00

    • Al

      Al

      Jun 19, 2019

      Good luck guys xxx

      £30.00

    • Viv Couchman

      Viv Couchman

      Jun 19, 2019

      Little sausage ❤️❤️❤️

      £30.00

    • Steve Groom

      Steve Groom

      Jun 19, 2019

      £20.00

    • Corinna Harper

      Corinna Harper

      Jun 19, 2019

      💓

      £10.00

    • Rachel Purchase

      Rachel Purchase

      Jun 15, 2019

      Having known tommo for many years I’ve watch Poppy from birth just hope this helps along the way to get Poppy her Pump ASAP xx

      £50.00

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    Amy Probert

    Amy Probert

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