Your friends are fundraising. Don't miss out, opt in.

Amy Whitby

Amy Whitby is crowdfunding

0

%

£1,235raised of £17,358 target by 46 supporters

Weʼre raising £17,358 to Fund a gastric pacemaker to potentially save my Nephews life, due to a rare incurable illness called Gastroparesis. Please help if you can.

Hertfordshire

What is crowdfunding?

Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.

The page owner is responsible for the distribution of funds raised.

Story

About four years ago my nephew Chris started to become sick, with loss of hearing, severe weight loss and vomiting, we realised something was seriously wrong. After many tests specialists confirmed that Chris has a rare condition called Gastropariesis, this causes the stomach muscles to become paralysed, so prevents food and liquids from staying down. Chris being as unique as he is has had the added bonus of pockets of air on his brain, caused by significant weight loss and a shrinkage of tissue, which now specialists have confirmed the two conditions are linked.

Chris now 36yrs has always been a healthy 12.8 stone and loved his food, he now weighs a dangerously low 8.9 stone and still dropping. He is unable to eat or drink without vomiting. He was fitted with a tube that was fed through his nose, this caused discomfort and embarrassment, he now has a PEG-J feeding tube in his abdomen, and a rucksack that carries pumps, tubes and syringes, this tube has to be changed every 3 months which costs the NHS £8,000 every time, often the tube comes out of his small intestine where he is fed and so needs changing on an even more frequent basis. Over a 12 month period Chris is costing the NHS approximately £164,000. He often jokes that if he was a horse he'd be glue by now.

On top of all of this all his feed comes in plastic bottles, his syringes are plastic as are his feeding tube attachments. He will use 265g of plastic per day, 967kg per year and over a 10 year period (the life expectancy of the pacemaker) that’s 9.672 tons of plastic!

Chris's surgeon Mr Kadirkamanathan has now agreed to fit a Gastric Pacemaker, but the NHS will not fund this, which is crazy considering how much the annual fee is at present to them. The pacemaker and aftercare will cost 17,357.58 and the surgeon will work for free and supply his own Anaesthetist, due to disagreeing that Chris has to fund this procedure himself.

Chris has remained positive throughout this journey, and is an inspiration to all others that suffer with this condition, he is a loyal family man and has a special bond with his beloved wife Lorraine and son Christopher. There has been times where he has felt really down and felt like giving up, but the love of his family has kept him going. We are now in the process of raising funds to better Chris's life and enable him to be pain free, socialise and eat again. We have lots of fundraising ideas that will take place locally, Chris is also going to contact local companies, radio stations, the press and our local MP. If you would like to join us in any events please keep posted for upcoming dates, if not a donation would be very much appreciated however small.

Share this story

Updates

7

  • Amy Whitby3 days ago
    Amy Whitby

    Amy Whitby

    3 days ago

    Thank you to all the support you have all given Chris. Here he is with his backpack being tube fed. No one should have to live live this if there is a chance to fix them with a Gastric Pacemaker. Please continue to help him and donate what you can. X

    Update from the Page owner

    Share this update to help us raise more

  • Amy Whitby6 days ago
    Amy Whitby

    Amy Whitby

    6 days ago

    End of the day and Chris is disposing of his feed and daily medical equipment. The majority of this equipment is plastic. His Syringes are plastic, as are his tube attachments. He will dispose of at least 265g of plastic per day, that equates to 967kg per year (just under a TON) and over a 10 year period he will use AT LEAST 9.672 tons of plastic!

    Update from the Page owner

    Share this update to help us raise more

  • Amy Whitby7 days ago
    Amy Whitby

    Amy Whitby

    7 days ago

    Chris received a £60 donation from a family locally in Stevenage wishing to show support. unsure at this time if they want to be named. But we all thank you tremendously X

    Share this update to help us raise more

10 days ago

Amy Whitby started crowdfunding

Leave a message of support

Page last updated on: 3/20/2019 11.35

Supporters

46

  • Alison Kirby

    Alison Kirby

    Mar 20, 2019

    Only a small amount but hope it helps and all the best to Chris and his family

    £20.00

  • Aiden Unwin

    Aiden Unwin

    Mar 19, 2019

    Good luck to you all!

    £10.00

  • Phil

    Phil

    Mar 19, 2019

    I assume this can be done during your break, yeah?Hope you get to that target mate, good luck!

    £50.00

  • Nas  Faruquee

    Nas Faruquee

    Mar 19, 2019

    £30.00

  • Alan Abrahams

    Alan Abrahams

    Mar 19, 2019

    Hi Amy,I really hope you are able to raise the funds needed. I wish I could donate more but I hope this small contribution helps.

    £5.00

  • Paul Unwin

    Paul Unwin

    Mar 19, 2019

    £50.00

  • Anonymous

    Anonymous

    Mar 19, 2019

    £10.00

Amy Whitby

Become a supporter

Help Amy Whitby raise more

About the fundraiser
Amy Whitby

Amy Whitby

Hertfordshire

Report this Page
Donate