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£463raised of £1,000 target by 23 supporters

Weʼre raising £1,000 to help towards research, medication and raise awareness for Relapsing Polychrondritis. beta.charitycommission.gov.uk Charity Number: 1170936

Leicester, UK

What is crowdfunding?

Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.

The page owner is responsible for the distribution of funds raised.

Story

My mother suffers from a condition called Relapsing Polychondritis. This is a rare disease which affects the immune system and the body's cartilage eats away at itself overtime causing disfigurement, constant pain and damage to joints. There is no cure for this disease. Also, there is treatment to try and help, but its all trial and error with individual patients due to it being so rare and not enough past evidence of what works.
She is currently undergoing weekly blood tests, scans and consultation appointments. Some drs do know about it, but only a very few, many have never heard of it.
Her other symptoms include redness, pain and swelling of the ears, nose and throat, shortness of breath and fatigue. Her immune system is extremely low so any infection or common cold she catches damages the cartilage further.

The charity has recently been set up and there are only a small amount of members and not much money raised.

Thank you for taking the time to read this and any donation is very much appreciated.

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Updates

2

  • Amy Sibson4 months ago
    Amy Sibson

    Amy Sibson

    4 months ago

    The event today raised a total of £255.00. Thank you to everyone that came along and donated. Very much appreciated.

    Update from the Page owner

    Share this update to help us raise more

  • Amy Sibson5 months ago
    Amy Sibson

    Amy Sibson

    5 months ago
    Update from the Page owner

    ❤️

    Share this update to help us raise more

5 months ago

Amy Sibson started crowdfunding

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Page last updated on: 10/22/2018 12:58 PM

Supporters

23

  • Kate Gilbertson-Hart

    Kate Gilbertson-Hart

    Oct 22, 2018

    Willie, Kate, Iona & Gabriel support your inspirational work to raise awareness for your mother’s rare condition and wish you the very best of luck with your fundraising. With love, the G-H’s

    £30.00

  • Amy Sibson

    Amy Sibson

    Oct 12, 2018

    £3.00

  • Lilly Norman

    Lilly Norman

    Oct 12, 2018

    Xxxxx

    £3.00

  • Christine Hancock

    Christine Hancock

    Aug 26, 2018

    Love to read your blog... hope you improve.. Blessings

    £20.00

  • Lesley & Maeve

    Lesley & Maeve

    Aug 22, 2018

    Well done Amy, love from Lesley & MaeveBook Borrowers Reading Group

    £10.00

  • Lesley & Maeve

    Lesley & Maeve

    Aug 22, 2018

    Well done Amy, love from Lesley & Maeve xBook Borrowers reading group

    £10.00

  • Debra N Butler

    Debra N Butler

    Aug 15, 2018

    A wonderful thing you are doing to help your Mother and educate others.

    £20.00

Amy Sibson

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About the fundraiser
Amy Sibson

Amy Sibson

Leicester, UK

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