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Amy Sibson raised £463 from 23 supporters
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Closed 18/07/2019
Weʼve raised £463 to help towards research, medication and raise awareness for Relapsing Polychrondritis. beta.charitycommission.gov.uk Charity Number: 1170936
- Leicester, UK
- Funded on Thursday, 18th July 2019
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Story
My mother suffers from a condition called Relapsing Polychondritis. This is a rare disease which affects the immune system and the body's cartilage eats away at itself overtime causing disfigurement, constant pain and damage to joints. There is no cure for this disease. Also, there is treatment to try and help, but its all trial and error with individual patients due to it being so rare and not enough past evidence of what works.
She is currently undergoing weekly blood tests, scans and consultation appointments. Some drs do know about it, but only a very few, many have never heard of it.
Her other symptoms include redness, pain and swelling of the ears, nose and throat, shortness of breath and fatigue. Her immune system is extremely low so any infection or common cold she catches damages the cartilage further.
The charity has recently been set up and there are only a small amount of members and not much money raised.
Thank you for taking the time to read this and any donation is very much appreciated.
Updates
2
5 years ago
Amy Sibson
5 years agoThe event today raised a total of £255.00. Thank you to everyone that came along and donated. Very much appreciated.
Share this update to help us raise more
5 years ago
Amy Sibson
5 years ago❤️
Share this update to help us raise more
Amy Sibson started crowdfunding
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Supporters
23
Kate Gilbertson-Hart
Oct 22, 2018
Willie, Kate, Iona & Gabriel support your inspirational work to raise awareness for your mother’s rare condition and wish you the very best of luck with your fundraising. With love, the G-H’s
£30.00
Amy Sibson
Oct 12, 2018
£3.00
Lilly Norman
Oct 12, 2018
Xxxxx
£3.00
Christine Hancock
Aug 26, 2018
Love to read your blog... hope you improve.. Blessings
£20.00
Lesley & Maeve
Aug 22, 2018
Well done Amy, love from Lesley & MaeveBook Borrowers Reading Group
£10.00
Lesley & Maeve
Aug 22, 2018
Well done Amy, love from Lesley & Maeve xBook Borrowers reading group
£10.00
Debra N Butler
Aug 15, 2018
A wonderful thing you are doing to help your Mother and educate others.
£20.00
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