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Andrew Coe raised £4,170 from 91 supporters
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Closed 30/09/2018
Iʼve raised £4,170 to Help me get through my 3rd round Non-hodgkins Lymphoma and see it off once and for all!
- Morden, UK
- Funded on Sunday, 30th September 2018
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Story
Right, so where to begin....
I'm having what's just been described as a Double, Extended tonsilectomy on Tuesday.
Scans, preceded by biopsies preceded by MONTHS of being bounced uselessly back and forth between multiple GP's and specialists seemingly uninterested. Fobbing me off with pointless antibiotics and painkillers which have done far more harm than good has finally led me to this situation.
*For those who don't know, I've already had N-H Lymphoma twice now including dozen of rounds of chemo and a stem cell transplant already*
Where my left tonsil used to be, roughly half still remains, bleeding, black and incredibly painful. When I finally saw someone who specialises in tonsil surgery and the lymphatic system today, he's jumped in to action and insisted on putting me at the VERY front of his queue for next week.
So serious that I'll be his first morning patient of the week.
He's told me, (which threw me a bit) that the extensive throat surgery IS the biopsy which he'll determine (more likely than not) that my lymphoma's back a 3rd time.
The whole situation is made significantly worse unfortunately due to being out of work from being too ill since January...
Having not had a proper diagnosis and having nearly been pushed under by the stress of the last 4 months I've been getting next to no benefits. Nothing for January whatsoever, February £119 (yes, total!) and I think I'm due to get £600-something next week to cover last month's overdue rent and this months rent already due.
If I have JUST the surgery I'm set to have around 4-6 weeks recovery and a month to get a new job. If I have surgery with follow up radio/chemo I can more or less kiss the rest of this year goodbye.
I've never ever felt so desperate in my life.
Getting through this a third time is going to be about as difficult as I can imagine, if the expected result comes back from the biopsy.
I've tried and tried to rebuild my life for 6 years, but I haven't got anything left now.
Updates
4
- 6 years ago
Andrew Coe
6 years agoJust a very brief update until I manage to order all the crazy events of the last few months in my head, then on to here. I've been giving it absolutely everything I've got to resist the illness and effects of surgery, chemo, and now radio for the last 3 months, and I won't be stopping anytime soon. A lot's happened since the initial post where my surgery had been penciled in but will explain it all at some point. Just 8 days of radio left then some sort of break for a few weeks!
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- 7 years ago
Andrew Coe
7 years agoJust a quick one... Back at home as of last night minus one normal tonsil and one huge one. Both sides pretty high on the pain scale but been told that the pain should be bearable by the start of next week. A week long wait for definitive biopsy results and a big decider on what treatment after this surgery is needed now. Had a good long deep sleep last night at long last, despite everything. Here's hoping that the left tonsil was all that was wrong and everything else (lumpy neck etc) was/is just a side-effect. Time for some morphine!
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- 7 years ago
Andrew Coe
7 years agoIf anyone's thinking of making a visit to the ward at all I'd love to see some smily faces. Nightingale Ward, 4th floor St James wing, St George's Hospital. Can visit up to 9pm
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Andrew Coe started crowdfunding
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Supporters
91
Dawn Derbyshire
Jul 11, 2018
Disgusting situation. Good luck Andrew! X
£10.00
Ben Baker
May 13, 2018
Best of luck kicking this shit into touch. Via Lfgss
£30.00
Anonymous
May 1, 2018
Never give up never give in ! Bullheart's Mum x
Bullheart
Apr 25, 2018
Keep grafting fella - let me know as and when you want to meet up for coffee and we'll do it!
£50.00
Simon OLC
Apr 20, 2018
Good luck Andy. Thinking of you and hoping you get the trial place. Let me know if you're up for a scrabble/KFC party in hospital again. Si
£100.00
Anonymous
Apr 20, 2018
Hope it helps somehow. Via LFGSS.
£20.00
Dave Lowe
Apr 20, 2018
Best of luck to you. Never give up.
£10.00
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