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Andrew Oldham raised £231 from 14 supporters

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Closed 22/08/2019

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£231raised of £400 target by 14 supporters

    Weʼve raised £231 to Give Charlie a chance

    Macclesfield
    Funded on Thursday, 22nd August 2019

    What is crowdfunding?

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    Story

    On 6th October I will be running the Chester Marathon in support of Charlie Walton. Charlie is a beautiful and happy 2 year old friend of our family. However, at 15 months of age Charlie was diagnosed with MECP2 Duplication Syndrome.

    MECP2 Duplication Syndrome was discovered in 2005. It is a very rare progressive neurological disorder, primarily affecting males. Common features include non-verbal communication, low muscle tone, developmental delay, intellectual impairment and/or autistic traits, recurrent deadly respiratory infections, and epilepsy. About half of individuals have seizures, often of the tonic-clonic type. This type of seizure involves a loss of consciousness, muscle rigidity, convulsions and may not respond to medication. Some affected individuals experience the loss of previously acquired skills (developmental regression).

    Over the course of winter Charlie has been hospitalised on numerous occasions due to his low immune system which makes him very susceptible to serious respiratory conditions.

    However, there is hope in the form of medical research. In 2015, researchers at the Baylor College of Medicine, led by Dr. Huda Y. Zoghbi, managed to reverse MECP2 Duplication Syndrome in mice using antisense therapy. The 401 project is dedicated to raising the funds to help research into reaching a viable treatment for humans.

    Any money raised on this page will go towards making treasured memories with Charlie, specialist equipment that Charlie will require in the future as well as all important donations to the pioneering research mentioned above.

    More information can be found on the following websites : Give Charlie a Chance & Reverse MECP2

    Updates

    3

    • Andrew Oldham5 months ago
      Andrew Oldham

      Andrew Oldham

      5 months ago
      Update from the Page owner

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    • Andrew Oldham6 months ago
      Andrew Oldham

      Andrew Oldham

      6 months ago

      Traininf update : Yesterday I ran the Snowdonia half marathon as part of my training for Chester. It is touted as one of the toughest half marathons in the UK and my legs are certainly confirming that now! I took it steady and managed to keep running until the very final hill with a 1:7 incline. After this the cramp set in and again had to painfully hobble the last 2 miles. I guess the only solution is more training?! Finished 162 out of 433 males in 1 hr 59 mins.

      Update from the Page owner

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    • Andrew Oldham7 months ago
      Andrew Oldham

      Andrew Oldham

      7 months ago

      Today I completed the Kinder Downfall Fell Race. It was an important milestone in my training, consisting of 9.7 miles of brutal climbs but also incredible views and glorious descents. I thoroughly enjoyed it but was in some serious pain towards the end of the main climb. When my watch clocked my HR at 195 I knew it was time to slow down! I'm really happy with the time of 1hr 40min. However, I suffered from some bad cramping in the final mile so this is something I'll have to prepare better for moving forward towards Chester.

      Update from the Page owner

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    7 months ago

    Andrew Oldham started crowdfunding

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    Page last updated on: 6/15/2019 06.21

    Supporters

    14

    • Anonymous

      Anonymous

      May 21, 2019

      What an amazing effort and lifeline for Charlie and children like him. We are in awe of what you are doing and we will be thinking of you! Good luck!

      £26.00

    • Anonymous

      Anonymous

      May 1, 2019

    • Chris

      Chris

      Apr 28, 2019

      Good luck Andy, your Kinder race today sounds excruciating! You will smash the marathon! Chris, Vicky, Matthew and Nathan.

      £20.00

    • Njal Long

      Njal Long

      Apr 28, 2019

      A great worthy cause! Best of luck mate!

    • Katy and Phil

      Katy and Phil

      Apr 28, 2019

      Good luck Andy, you will be ace!! Love the Lawrence's xxxx

      £20.00

    • Carli Willis

      Carli Willis

      Apr 28, 2019

      Well done Andy. A great cause. Love Carli, Ed and the girls x

      £10.00

    • Kathleen Portlock

      Kathleen Portlock

      Apr 27, 2019

      Good luck Andy 🎖🎖Kath & John x

      £10.00

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    About Crowdfunding
    About the fundraiser
    Andrew Oldham

    Andrew Oldham

    Macclesfield

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