Story
I'm taking part in a White Collar Boxing Match on June 15th 2019, to raise money for Rhys Williams.
Rhys Williams is a 13 year old who suffers from epidermolysis bullosa. This is rare genetic skin condition where no collagen 7 is produced. In easy terms his skin falls off. Any knock, bump or friction can cause skin loss creating large open wounds or even blisters that don‘t stop growing. Even a cuddle can cause trauma. His hands and toes have webbed and fused due to wounds that have healed and he’s now wheelchair bound due to his hips fusing. Most days the pain is very intense but despite all this Rhys is a happy boy much of the time.
The life expectancy for someone with epidermolysis bullosa is around 25 years as they have a high chance of developing skin cancer which causes many deaths in people with this condition. Infection and flu also cause many deaths in people with epidermolysis bullosa.
Rhys’ dream is to go on holiday to Florida so any money raised will go towards this goal.