Your friends are fundraising. Don't miss out, opt in.

We did it!

Angela Ryan raised £5,348.5 from 147 supporters

or

Start your own crowdfunding page

Closed 15/02/2019

0%
£5,348raised of £5,000 target by 147 supporters

    Weʼve raised £5,348 to help fund a ventilation mask for baby Charlie Wagstaff who suffers from a rare genetic disorder. If he falls asleep he stops breathing.

    Hambledon, Waterlooville, UK
    Funded on Friday, 15th February 2019

    What is crowdfunding?

    Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered nonprofit.

    The page owner is responsible for the distribution of funds raised.

    Story

    Steve and I are hoping to help raise funds for adorable little baby Charlie Wagstaff who was born with a rare genetic disorder called Congenital Hypoventilation Syndrome (CCHS) which means he stops breathing every time he falls asleep and sometimes when he cries or even when he concentrates. We and our staff at our pub were all looking forward to meeting Sophie and Chris's baby and were heartbroken to hear of Charlies condition and can only imagine the struggles his Mum and Dad have been through. It is so rare that only 1000 people in the world have been diagnosed with this lifelong and life threatening condition, which has completely turned his Mum and Dad's life around. Charlie spent four Months in hospital before coming home with lots of equipment and carers who watch over him every night. He wears a mask attached to a ventilator every time he goes to sleep - his life support machine and his oxygen and carbon dioxide levels also have to be closely monitored to keep him safe. See links to understand more about this condition.

    CCHS https://www.cchsuk.org/

    & #MovingTowardACure.

    CCHS Foundation cchsnetwork.org

    Charlies mask is starting to cause him facial deformities, so any money raised will go towards a bespoke mask which will hopefully allow his face to develop properly over the next 6 Months. As babies grow so fast he will require a new one every 6 Months. A Doctor from Denmark will need to fly over to England for the bespoke fitting. He will need a clinical room at a hospital and the local NHS are able to provide the room and whatever else is required but it needs to be paid for. We are also holding a Neil Diamond tribute event at our Pub and hope to raise as much as we can there. Thanks every one! Angie x

    Updates

    5

    • Angela Ryan1 year ago
      Angela Ryan

      Angela Ryan

      1 year ago

      Thanks to you FANTASTIC PEOPLE the Doctor has now been booked to come over to England in January! Steve's Neil Diamond event & the raffle at our Pub on Saturday means so far a total of approx. 7k has been raised maybe more as we are still receiving donations. Charlie will need a new mask every 6 Months, but for now we have all so far raised enough money for two masks! Chris and Sophie are overwhelmed with the generosity and kindness shown by so many kind and caring people and thank you from the bottom of their hearts. Angie xxxxx

      Share this update to help us raise more

    • Angela Ryan1 year ago
      Angela Ryan

      Angela Ryan

      1 year ago

      Charlies Mum & Dad are ecstatic! They can now pay for Charlie's special mask which will grow with him for about 6 Months. Then another one will need to be made - babies grow so fast! There is no Doctor in the NHS who can make this special bespoke mask. If anyone knows of a Doctor/medical professional in the UK who can please let us know. His parents are hoping for a Charlie's trust fund to give this little darling poppet a better future. Yesterday was CCHS Foundation day #MovingTowardACure thank you so much kind people Angie xxx

      Share this update to help us raise more

    • Angela Ryan1 year ago
      Angela Ryan

      Angela Ryan

      1 year ago

      It's so fantastic how this funding campaign has escalated to the national papers! It's going to happen! There are other children in Britain with the same life threatening condition and we hope that the publicity will raise awareness see: www.cchsuk.org/ and that this organisation will be supported greatly by the generous British public. You are all helping one little gorgeous tot and his family and they cannot find the words to express their gratitude to you wonderful and kind supporters. Top people you are! Angie xx

      Share this update to help us raise more

    1 year ago

    Angela Ryan started crowdfunding

    Leave a message of support

    Page last updated on: 12/20/2018 11.19

    Supporters

    147

    • Anna Marczyk

      Anna Marczyk

      Dec 20, 2018

      £10.00

    • sarah pete

      sarah pete

      Dec 6, 2018

      Go Charlie!!! Can’t wait to meet u one day little man!!! 😍 so much love from all us Meriano’s (esp Leo pancake!) xxx

      £50.00

    • Anonymous

      Anonymous

      Dec 6, 2018

      Thanks for supporting Charlie and his Mum and Dad

    • Elissa Dolan

      Elissa Dolan

      Dec 3, 2018

      Thinking of you all, best of luck, hope all goes well. Joe's sister x

      £20.00

    • Mike & Martina Costello

      Mike & Martina Costello

      Dec 2, 2018

      £50.00

    • Imelda & Thomas Burke

      Imelda & Thomas Burke

      Dec 2, 2018

      £20.00

    • Russell Guiver

      Russell Guiver

      Dec 2, 2018

      Friend put me onto this. Glad to do my little bit. All the best to thr lad and the family too.

      £10.00

    Great people make things happen

    Do you know anyone in need or maybe want to help a local community cause?

    Create you own page and donʼt let that cause go unfunded!

    About Crowdfunding
    About the fundraiser
    Angela Ryan

    Angela Ryan

    Hambledon, Waterlooville, UK

    Report this Page