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£4,283raised of £4,500 target by 128 supporters

Weʼre raising £4,500 to help fund a ventilation mask for baby Charlie Wagstaff who suffers from a rare genetic disorder. If he falls asleep he stops breathing.

Hambledon, Waterlooville, UK

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Story

Steve and I are hoping to help raise funds for adorable little baby Charlie Wagstaff who was born with a rare genetic disorder called Congenital Hypoventilation Syndrome (CCHS) which means he stops breathing every time he falls asleep and sometimes when he cries or even when he concentrates. We and our staff at our pub were all looking forward to meeting Sophie and Chris's baby and were heartbroken to hear of Charlies condition and can only imagine the struggles his Mum and Dad have been through. It is so rare that only 1000 people in the world have been diagnosed with this lifelong and life threatening condition, which has completely turned his Mum and Dad's life around. Charlie spent four Months in hospital before coming home with lots of equipment and carers who watch over him every night. He wears a mask attached to a ventilator every time he goes to sleep - his life support machine and his oxygen and carbon dioxide levels also have to be closely monitored to keep him safe. See links to understand more about this condition.

CCHS https://www.cchsuk.org/

& #MovingTowardACure.

CCHS Foundation cchsnetwork.org

Charlies mask is starting to cause him facial deformities, so any money raised will go towards a bespoke mask which will hopefully allow his face to develop properly over the next 6 Months. As babies grow so fast he will require a new one every 6 Months. A Doctor from Denmark will need to fly over to England for the bespoke fitting. He will need a clinical room at a hospital and the local NHS are able to provide the room and whatever else is required but it needs to be paid for. We are also holding a Neil Diamond tribute event at our Pub and hope to raise as much as we can there. Thanks every one! Angie x

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Updates

4

  • Angela Ryan11 days ago
    Angela Ryan

    Angela Ryan

    11 days ago

    Charlies Mum & Dad are ecstatic! They can now pay for Charlie's special mask which will grow with him for about 6 Months. Then another one will need to be made - babies grow so fast! There is no Doctor in the NHS who can make this special bespoke mask. If anyone knows of a Doctor/medical professional in the UK who can please let us know. His parents are hoping for a Charlie's trust fund to give this little darling poppet a better future. Yesterday was CCHS Foundation day #MovingTowardACure thank you so much kind people Angie xxx

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  • Angela Ryan13 days ago
    Angela Ryan

    Angela Ryan

    13 days ago

    It's so fantastic how this funding campaign has escalated to the national papers! It's going to happen! There are other children in Britain with the same life threatening condition and we hope that the publicity will raise awareness see: www.cchsuk.org/ and that this organisation will be supported greatly by the generous British public. You are all helping one little gorgeous tot and his family and they cannot find the words to express their gratitude to you wonderful and kind supporters. Top people you are! Angie xx

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  • Angela Ryan22 days ago
    Angela Ryan

    Angela Ryan

    22 days ago

    We're absolutely amazed at your kind support and how much you have helped us to raise so far. Charlies Mum and Dad are overwhelmed and can't express in words how grateful they are to everyone. Look out for the Portsmouth News story & the Neil Diamond tribute event performed by the Landlord of our Pub on 1st Dec to raise more funds for Charlie. Wish it was the real Neil Diamond though.....hahaha! We need to raise a total of three thousand pounds to cover the medical costs for Charlie's special mask. Thank you so much everyone! Angiexx

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1 month ago

Angela Ryan started crowdfunding

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Page last updated on: 11/20/2018 7:09 PM

Supporters

128

  • Tony Shaw

    Tony Shaw

    Nov 20, 2018

    £50.00

  • Steven Moore

    Steven Moore

    Nov 20, 2018

    £30.00

  • Aaron and gemma

    Aaron and gemma

    Nov 17, 2018

    Lots of love gemma and Aaron x

    £50.00

  • James Metcalfe

    James Metcalfe

    Nov 15, 2018

    Good luck with dealing with the situation you find yourselves in!

    £20.00

  • Tom Owen

    Tom Owen

    Nov 15, 2018

    With all our love. Tom Owen and family! Couldn't do enough for such a lovely family xxxLove ya Wag

    £100.00

  • Christine Jolliffe

    Christine Jolliffe

    Nov 15, 2018

    To the Wagstaff family,I hope you get the mask you need. Thinking of you all lots.Best wishesChristine Jolliffe

    £10.00

  • Anonymous

    Anonymous

    Nov 15, 2018

    Love to you all and hope this helps a little bit Ben + Chris Smith x

    £200.00

Angela Ryan

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About the fundraiser
Angela Ryan

Angela Ryan

Hambledon, Waterlooville, UK

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